Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

Discussion in 'ME/CFS research' started by pooriepoor91, Feb 21, 2024.

  1. rvallee

    rvallee Senior Member (Voting Rights)

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    The NIH have selected this study as part of their 2024 highlights. Which is seriously puzzling since it provided zero useful insights and was generally speaking a total bust.

    https://www.nih.gov/news-events/nih...esearch-highlights-promising-medical-findings

    I have no idea how those two adjacent sentences can be reconciled, but I don't think anyone involved in this thought about this for more than a microsecond:
     
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  2. Yann04

    Yann04 Senior Member (Voting Rights)

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    They really chose the worst part to put in the highlights... I thought they were trying to avoid provoking us any further given all the drama and backlash. I guess whoever compiled this page might be oblivious.

    That sentence also really shows they had no clue what living with condition was like. You say that to anyone with ME and they will reply "yeah I can do more than I let myself, but it will lead to worsening of my condition"
     
    Last edited: Dec 26, 2024
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  3. Eleanor

    Eleanor Senior Member (Voting Rights)

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    The funny thing is, out of context, "fatigue may arise from a mismatch between what someone thinks they can achieve and what their bodies perform” sounds like it means "people with ME think they can do more than their bodies are actually capable of performing and that's why they're always so tired."
     
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  4. rvallee

    rvallee Senior Member (Voting Rights)

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    Exactly! It's perversely somewhat not entirely wrong, but misinterpreted out of ambiguity that is obviously on purpose. Not that "fatigue arises" from that makes any sense though. That's just word salad, and completely absurd to make this the main takeaway. But that's just psychobehavioral ideologues doing their thing.
     

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