Folks I'm "researching": diseases i.e. which resemble ME/CFS: Lyme Disease, Ross River, EBV, --- any other suggestions? and organisations which represent those diseases i.e. which may cooperate with ME/CFS. Thanks (in advance) for your help .
Bartonella for sure. Arguably Babesia, too, although this more closely resembles Long Covid in many instances. Most Borrelia iterations, e.g B Miyamotoi vs B Burgdorferi. As for organizations which represent them, any Lyme org like Bay Area Lyme or Lymedisease.org or GLA (Global Lyme Alliance). I believe they are all literate in any alleged TBD. I say alleged since IDSA/CDC say Bartonela is not a proven TBD. ETA: Almost forgot Rickettsia!
https://www.s4me.info/forums/other-specific-illnesses-discussions.212/ Have a look at the threads in that forum @FMMM1 - there are threads about diseases that can be misdiagnosed as ME/CFS and some about those that may have a similar underlying pathology e.g. Gulf War Illness.
Noticed that Giardia turns up in discussions on this forum i.e. since symptoms may be similar to ME/CFS - correct? So I've got the following to research: Lyme + "Infections that cause ME (Ross River, EBV, etc) EDIT - Giardia added" Any further charities you'd recommend? EDIT - any charities but ross river isn't a disease I've heard much about. Thanks
International Lyme and Associated Diseases Association (ILADS) is US based primarily Lyme society. I suspect most ILADS members including clinicians will be familiar with ME /CFS.
Academy of Nutritional Medicine They have annual conferences bringing together clinicians including LLMDs and those with knowledge of ME etc.