Do you feel worse, better or the same when you wake compared to when you went to sleep?

[AliceLily]

I do in phases. A week or so of napping every day, then a week or two without.
I certainly could not work though.

Some of those info/scales of ME/CFS say “moderate” need to rest in the afternoon, some say nap.

Many say moderate May need to use a wheelchair when out - I wouldn’t manage a wheelchair, but I can walk.

I hate all the fiddling with scales/levels of severity it’s another one of those “shuffling the deckchairs on the Titanic” activities which everyone seems to want to endlessly tinker with, like pacing guides.

Same.

 

[MinIreland]

https://www.s4me.info/threads/what-time-of-day-do-you-feel-at-your-“best”.10798/post-192192

one reason I really object to the description of 'moderate' including 'needing to sleep a couple of hours in the afternoon'.
Does anyone here who is moderate do that?

I do. Not for a couple of hours, but I definitely need a nap around lunchtime and also in the early evening (skipping the lunch nap impacts my symptoms more than skipping the late afternoon one, but I will have more trouble falling asleep in the evening if I skip the late afternoon one). I usually rest for 60-90 mins and I probably sleep for only 20-30 mins in that timeframe.