Do you get a lot of heat in your head with a ME headache?

[AliceLily]

In general, even before becoming ill with ME - I had issues with temperature control. Especially feeling very hot and overheated in my head and even in my body. My mums also had the same all her life. So I think there’s a genetic element in there too and weirdly I was told at my autism assessment quite a few autistic girls (and boys?) have this issue with feelings of temperature control and feeling hot (even if temp isn’t actually raised). So again perhaps links in to the neurological side of things.

I missed replying about the autistic part. I have often wondered that I might have some autism. I have always been very slow, slower thinker, can't keep up with conversation.

 

[AliceLily]

Rosie oh yes I’m similar in the winter.. I don’t feel well in sustained cold temperatures at all. It’s just when I’m feeling very hot and weird head feelings - at that point if I am then exposed to cold, I feel good and “well”. But then a short time after that, the temperature needs to go back to a normal, perfect suitable temperature for me to feel ok. If it stays too cold I’ll start shivering! I’ve really got temperature regulation issues!

Same here @lunarainbows , everything you said.

 

[lunarainbows]

I missed replying about the autistic part. I have often wondered that I might have some autism. I have always been very slow, slower thinker, can't keep up with conversation.

Many girls / women get diagnosed late in life because the signs don't get picked up earlier on. There can often be differences between girls and boys with autism. This is a pretty good article
https://www.spectrumnews.org/features/deep-dive/costs-camouflaging-autism/


I pretty much spent my life growing up thinking I had extremely severe social anxiety and severe general anxiety - but I got so good at figuring out ways of coping, with conversations and life in general, I thought my whole life would just be spent always spending so much energy doing that. Life was constantly exhausting. Everyone thought I was amazingly confident and found socialising easy!

And yes at times it was like I was going so slow compared to other people. But other times (like in writing or reading), I go so fast compared to other people!

In the article: “The adults in the survey described an imaginative store of tools they call upon in different situations to avoid pain and gain acceptance. If, for example, someone has trouble starting a conversation, she might practice smiling first, Lai says, or prepare jokes as an ice-breaker. Many women develop a repertoire of personas for different audiences. Jennifer says she studies other people’s behavior and learns gestures or phrases that, to her, seem to project confidence; she often practices in front of a mirror.

Before a job interview, she writes down the questions she thinks she will be asked, and then writes down and memorizes the answers. She has also committed to memory four anecdotes she can tell about how she met a challenging deadline. The survey found that women on the spectrum often create similar rules and scripts for themselves for having conversations. To avoid speaking too much about a restricted interest, they may rehearse stories about other topics. To hide the full extent of her anxiety when she is “shaking inside” because, say, an event is not starting on time, Swearman has prepared herself to say, “I’m upset right now. I can’t focus; I can’t talk to you right now.””

 

[AliceLily]

Many girls / women get diagnosed late in life because the signs don't get picked up earlier on. There can often be differences between girls and boys with autism. This is a pretty good article
https://www.spectrumnews.org/features/deep-dive/costs-camouflaging-autism/


I pretty much spent my life growing up thinking I had extremely severe social anxiety and severe general anxiety - but I got so good at figuring out ways of coping, with conversations and life in general, I thought my whole life would just be spent always spending so much energy doing that. Life was constantly exhausting. Everyone thought I was amazingly confident and found socialising easy!

And yes at times it was like I was going so slow compared to other people. But other times (like in writing or reading), I go so fast compared to other people!

In the article: “The adults in the survey described an imaginative store of tools they call upon in different situations to avoid pain and gain acceptance. If, for example, someone has trouble starting a conversation, she might practice smiling first, Lai says, or prepare jokes as an ice-breaker. Many women develop a repertoire of personas for different audiences. Jennifer says she studies other people’s behavior and learns gestures or phrases that, to her, seem to project confidence; she often practices in front of a mirror.

Before a job interview, she writes down the questions she thinks she will be asked, and then writes down and memorizes the answers. She has also committed to memory four anecdotes she can tell about how she met a challenging deadline. The survey found that women on the spectrum often create similar rules and scripts for themselves for having conversations. To avoid speaking too much about a restricted interest, they may rehearse stories about other topics. To hide the full extent of her anxiety when she is “shaking inside” because, say, an event is not starting on time, Swearman has prepared herself to say, “I’m upset right now. I can’t focus; I can’t talk to you right now.””

@lunarainbows Thanks for the link. I'll take a look in weekend and reply again then. x

 

[dangermouse]

I get migraines often. Long lasting. Always on left side with aura. The pain is in head, eye, sinuses, jaw, teeth, neck, shoulder and arm.

I do feel heat on that side sometimes, not always.

I find ice pack helps. But, short lived.