mango
Senior Member (Voting Rights)
Bragée Clinics are apparently supporting unevidenced treatments for ME. Not sure how else to interpret the fact that Björn Bragée is featured in a campaign video by FSI, and this article published on their webpage:
FSI larmar i skrivelse och film
https://www.bragee.se/detta-ar-en-meljon
FSI about their petition:
FSI larmar i skrivelse och film
https://www.bragee.se/detta-ar-en-meljon
FSI about their petition:
FSI auto-translate said:FSI will shortly write to the National Board of Health and Welfare and other interested parties expressing our concerns about the care of patients with Myalgic Encephalomyelitis (ME) and post-covid. In a rather extensive document with various sources, we will convey that patients require individualised treatment based on medical history and symptoms rather than biomarkers. Despite the lack of evidence-based treatments for the group, clinical experience and smaller studies have shown positive effects of some treatments for many patients.
The letter emphasises the importance of not being limited to efficacy studies. Furthermore, that treatments based on clinical experience should be considered more for these diseases. For example, we mention treatments such as low-dose Naltrexone, B12 injections, IVIg and Valganciclovir, all of which have shown positive effects in large subgroups.