Open Dr. Jose Montoya launches biobank for donors of brain and other tissues

Source: Solve ME/CFS Initiative

Date: October 30, 2018

URL: http://solvecfs.org/archive

Dr. Jose Montoya launches biobank for donors of brain and other tissues
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Healthy volunteers as well as ME/CFS patients are eligible for enrollment

Dr. Jose Montoya has started the Stanford Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Initiative (ME/CFS) Biobank for those who wish to donate their brain and/or other tissues to the ME/CFS research program after their death. Dr. Montoya and his team are enrolling people in the registry who have been diagnosed with or suspect that they have ME/CFS, as well as healthy volunteers.

Intended donors should enroll in the research registry and provide contact information for themselves and their next-of-kin, as well as complete a comprehensive questionnaire about medical history and symptoms.

If you are interested in enrolling in the registry and becoming an intended donor or have any questions, please contact the research coordinator at (650) 723-8126.

 

This is great! Hopefully there is some degree of coordination with the LSHTM biobank.

The link points to an archive of posts of SMCI. Is there a direct URL with information about the biobank?

 

I don't know - I just posted what I received. Sorry.

 

This is either very new news, or old news. My Google skills, which are normally fairly good, can find no recent links. Clicking through to the link in the original post above, there is nothing in the various documents there for the last 6 months that mentions a biobank at Stanford. As far as I can see, it's a bit of a mystery.

 

It's new news.

Webpage, https://solvecfs.org/me-cfs-study-participants-needed-asap-for-five-different-stanford-studies/

Facebook post

Code:

https://www.facebook.com/SolveMECFSInitiative/posts/10155805242672108