Daily Mail article from today https://www.dailymail.co.uk/health/...ake-oil-ear-seeds-Kate-Moss-Cherie-Blair.html Dr Alistair Miller is interviewed So what can people with ME do to recover? Cognitive behavioural therapy, also known as CBT, a type of psychotherapy, can help. The benefit is indirect, helping patients cope better with some of the symptoms. Painkillers like paracetamol or ibuprofen can improve discomfort. Sufferers are also encouraged to monitor their daily activities so they can work out the best way to use the energy they do have. Some people with ME find that exercising helps with their symptoms, although too much can trigger what is known as post-exertional malaise – where mental or physical strain can make people’s symptoms worse. Dr Miller says: ‘There’s no doubt the best approach is for people to push themselves a bit, but not too hard. It’s a compromise. What people need to do is exercise a bit but not to extremes.’
Oh ok now they’re coming out - couldn’t stand the charities getting the sensible message out. What planet is Miller on
Dr Miller is desperately trying to still push exercise and CBT, whilst not contradicting the new NICE guidelines. It is unfortunate that the guidelines were dilute enough to allow the GET/CBT believers to continue in place with only minimal mental gymnastics.
That is disgraceful advice. It's not NICE compliant. NICE does not encourage people to push themselves a bit - that's GET. Most pwME can't 'exercise a bit but not to extremes'. He hasn't a clue.
This segment is really good - a positive to come out of this I think. Dr Arif seems great - informed, sensible and empathetic. I hope we get to hear more from her!
And just to add, my sister is an acupuncturist. I don't know if they were 'ear seeds', but I remember having things stuck to my ears by her in the past. Must have been ear seeds I think. Did nothing.
Dr Alastair Miller is Medical Advisor to the Sussex ME/CFS Society - sabotaging ME patients since the 1980s
One of the many Medical Advisors to this local group. It has more medical advisors than any of the national ME groups. I have not done the arithmetic but I suspect as many advisors as all the national groups added together. One wonders how many of the BPS researchers in the past that have cited support of patient groups for their research are referencing this group, that declines to disclose the size of its membership.
That is good news. Now they need to include a clear explanation in the next eplsode that it's a scam, and an apology to all who were misled. And they need to avoid in future any similar scams.
Great news. It is truly heartening to have seen the wide spread support for the patient view point and largely accurate reporting in all the main UK newspapers rather than just publications like the Canary which has regularly reported accurately on ME issues. All though it often feels like with ME in the media it is one step forward two steps [back], this last week has felt like real progress. [edit - corrected wrong word choice]
Latest from the BBC - 8.30 ish pm 25th January 2024 The BBC *still* defending the Dragons Den Acu seeds program, and calling ME charities, ME sufferers, ME advocates and ME Doctors "Campaigners". It's a disgraceful, inexcusable, lily livered article. 'Dragons' Den: BBC defends show after ME criticism of Acu Seeds' https://www.bbc.co.uk/news/entertainment-arts-68097756
You gotta love when they add this meaningless but on a... (OK imagine the rest is in all caps)... tv show that is literally about endorsing products by investing in them! I mean for sure they don't endorse the product if they all decline, but this episode made the headline by all the investors on the show... endorsing the product. Which is the literal and entire concept of the show. Words and their meaning, it's all so complicated. And yeah they are definitely remorselessly standing by it, with some lazily-copied bits from misleading NHS sites, and the usual lies about "managing symptoms". Ah well. They chose to suck, then when given the opportunity to do better, they decided to suck again.
Agree latest BBC article is poor. Description of ME pathetic. NHS website on ME still bad. “ME is a long-term condition with a wide range of symptoms including extreme tiredness, sleep issues and concentration problems, according to the NHS website.” https://www.bbc.co.uk/news/entertainment-arts-68097756 Feels like the BPS lot may have got their contacts to write new media articles undermining ME.
Piss off, 'doctor'. You have dined out on our suffering for far too long. Go find an honest job. Some things should be cancelled, like this garbage.
Paragraph in a diary column by Martin Samuel in Times today. From https://www.thetimes.co.uk/article/this-phobia-made-me-eye-roll-but-now-i-see-the-light-qjxrg9fh6
Action for ME's Medical Advisor Dr Strain in the latest Mail article: 'Professor Strain says that, if caught very early, ME patients have a better chance of recovery from making simple lifestyle changes such as improving diet and exercise.' https://www.dailymail.co.uk/health/...ake-oil-ear-seeds-Kate-Moss-Cherie-Blair.html What is he doing for goodness sake! If Dr Strain was misquoted then Action for ME must insist the Mail changes the text. If that quote is for real then what are AFME doing with a medical advisor who contradicts NICE and recommends diet and *exercise* with No evidence? .
