Hi folks, I'm planning to travel to USA to see some physician who has experience in treating patients with ME, probably in the first months of next year, the East Coast being the easiest place to go. Any sugestions of Doctors ? Susan Levine in NY or Nancy Klimas in Miami ? Anyone gere treating with them? Thank you.
If either is one of the handful treating with Ampligen (only 100 patients in the US are allowed to be treated at any given time per the FDA and all out of pocket and I think there is a waiting list) or with specific antivirals, then either would probably be a good choice. Nancy Klimas will at least run tests as she is an immuno-clinician (or something like that and there are only a few in the country) where blood tests are run to reveal your overall immunological and Natural Killer Cell health. Nancy Klimas is featured in the film 'Unrest'.
It would probably be worthwhile to check to see if either have availability to see new patients. The timing of your trip might be impacted by that.