Energy management education and occupation-related outcomes in adults with chronic diseases: A scoping review, 2020, Farragher et al

Free full text: https://journals.sagepub.com/doi/full/10.1177/0308022620904327

Energy management education and occupation-related outcomes in adults with chronic diseases: A scoping review

5 of the 44 studies were CFS studies

 

The paper isn't open access anymore (at least for me) --
sci-hub link: https://sci-hub.se/10.1177/0308022620904327

 

Haven't read the paper, but was surprised by this:

Exclusion criteria

•The fatigue intervention included one or more other fatigue management approaches (for example cognitive-behavioral therapy, exercise) in addition to energy management education.

So there are CBT-and-exercise-free 'education programs' for coping with fatigue in chronic diseases?

@dave30th

 

Yes but there isn't that much research on it, I think.

I think pacing in ME/CFS comes from and is included in this tradition of energy management techniques in chronic illnesses such as MS. There's however another interpretation of pacing with comes from the chronic pain literature which is more focused on increasing physical activity. I've tried to explain this in a comment to a paper by Antcliff and colleagues who are applying the second definition of pacing in the field of ME/CFS.

The PACE-trial and its limitations are briefly mentioned in this paper by the way