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Finland: Duodecim ME/CFS Guideline: Draft Published for Consultation

Discussion in 'Other guidelines' started by mango, Nov 10, 2020.

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  1. mango

    mango Senior Member (Voting Rights)

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    mango, Nov 10, 2020
    #1
    Robert 1973, Snowdrop, JaneL and 11 others like this.
  2. Hoopoe

    Hoopoe Senior Member (Voting Rights)

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    The link is to a page for commenting on them. Where can we read these guidelines?
     
    Hoopoe, Nov 11, 2020
    #2
    alktipping, Andy and Hutan like this.
  3. mango

    mango Senior Member (Voting Rights)

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    It says that if you fill out the form and click through, you will be able to access the material.

    ETA:
     
    Last edited: Nov 11, 2020
    mango, Nov 11, 2020
    #3
    alktipping, lunarainbows, Andy and 2 others like this.
  4. Hoopoe

    Hoopoe Senior Member (Voting Rights)

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    Yes I found it. I got a copy in Finnish and Google can translate the entire document. Some of what they are recommending

    There are many more recommendations.

    Overall it seems good but as usual there is a bit of an obsession with exercise. The problem is that they recommend exercise to increase functional capacity when we know this doesn't work.
     
    Last edited by a moderator: Nov 11, 2020
    Hoopoe, Nov 11, 2020
    #4
    alktipping, NelliePledge, Anna H and 9 others like this.
  5. mango

    mango Senior Member (Voting Rights)

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    Ooh, brilliant! Thank you so much :)
     
    mango, Nov 11, 2020
    #5
    sebaaa, Anna H, alktipping and 2 others like this.
  6. mango

    mango Senior Member (Voting Rights)

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    mango, Nov 12, 2020
    #6
    Amw66 and Andy like this.
  7. Esther12

    Esther12 Senior Member (Voting Rights)

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    Might the new NICE draft be useful for helping push for improvements? Best of luck to everyone working on that.
     
    Esther12, Nov 12, 2020
    #7
    alktipping, Rick Sanchez, sebaaa and 2 others like this.
  8. JemPD

    JemPD Senior Member (Voting Rights)

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    Thinking of you all hoping the bits that unhelpful can be improved, gosh there's a lot going on at the moment!
     
    JemPD, Nov 12, 2020
    #8
    alktipping, Rick Sanchez, sebaaa and 1 other person like this.
  9. ME/CFS Skeptic

    ME/CFS Skeptic Senior Member (Voting Rights)

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    Duodecim publishes evidence-based medical guidelines that are taken over by other countries (for example here in Belgium). I have sent a mail asking if this will also be the case for these ME/CFS recommendations or whether they are intended for Finland only.
     
    ME/CFS Skeptic, Nov 19, 2020
    #9
    alktipping, Joh, sebaaa and 5 others like this.
  10. mango

    mango Senior Member (Voting Rights)

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    The new guideline has now been published:

    https://www.terveysportti.fi/apps/ltk/article/hsu00019?toc=476592



    http://www.europeanmealliance.org/news-Q12021-002.shtml
     
    mango, Feb 24, 2021
    #10
    Hutan, Michelle, cfsandmore and 5 others like this.
  11. Snowdrop

    Snowdrop Senior Member (Voting Rights)

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    Now if only Canada and others would step up and do the same. One could start calling it a trend.
     
    Snowdrop, Feb 24, 2021
    #11
    cfsandmore likes this.
  12. dave30th

    dave30th Senior Member (Voting Rights)

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    is there an english-language version? Are they improved from the earlier version?
     
    dave30th, Feb 24, 2021
    #12
    Hutan and Michelle like this.
  13. mango

    mango Senior Member (Voting Rights)

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    I haven't been able to find an english-language version (yet).

    By earlier version, do you mean the draft? This is the first published version, I believe it's Duodecim's first ever guidelines for ME/CFS.
     
    mango, Feb 24, 2021
    #13
    Hutan, Michelle and Andy like this.
  14. mango

    mango Senior Member (Voting Rights)

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    mango, Feb 24, 2021
    #14
    Hutan, Michelle, cfsandmore and 3 others like this.
  15. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Thank you for providing these links, @mango !

    It doesn't sound like they're quite there yet. Here are some quotes from the google translated article from the Finnish Medical Journal:
     
    Kalliope, Feb 24, 2021
    #15
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  16. mango

    mango Senior Member (Voting Rights)

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    mango, Feb 24, 2021
    #16
    Hutan, Michelle, oldtimer and 2 others like this.
  17. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Kalliope, Feb 24, 2021
    #17
    Hutan, cfsandmore, Andy and 1 other person like this.
  18. mango

    mango Senior Member (Voting Rights)

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    mango, Feb 24, 2021
    #18
    Hutan, cfsandmore and Andy like this.
  19. Esther12

    Esther12 Senior Member (Voting Rights)

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    So there is no evidence based treatment, but they know how to treat it? This is a mentality that worries me.
     
    Esther12, Feb 24, 2021
    #19
    Hutan, Michelle, Sly Saint and 4 others like this.

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