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me/cfs

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  1. Sly Saint
    Thread

    Deep phenotyping of myalgic encephalomyelitis/chronic fatigue syndrome in Japanese population: Kitami, Fukuda et al 2020

    Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex and debilitating disease with no molecular diagnostics and no...
    Thread by: Sly Saint, Nov 17, 2020, 5 replies, in forum: BioMedical ME/CFS Research
  2. Dx Revision Watch
    Thread

    The WHO has approved my proposal for removal of "Benign" from "Benign myalgic encephalomyelitis" for ICD-11

    Yesterday, the WHO approved my February 2020 proposal for removal of "Benign" from "Benign myalgic encephalomyelitis" for ICD-11. See thread:...
    Thread by: Dx Revision Watch, Nov 14, 2020, 8 replies, in forum: General Advocacy Discussions
  3. Andy
    Thread

    Sick of the Sick Role: Narratives of What “Recovery” Means to People With CFS/ME, 2020, White et al

    Little is known about what recovery means to those with chronic fatigue syndrome/myalgic encephalomyelitis, a poorly understood, disabling chronic...
    Thread by: Andy, Nov 13, 2020, 82 replies, in forum: PsychoSocial ME/CFS Research
  4. mango
    Thread

    Finnish Duodecim ME/CFS Guideline: Draft Published for Consultation

    The Finnish Medical Society Duodecim recently published their ME/CFS draft guideline ("Good Practice Consensus Recommendation"). Comments can be...
    Thread by: mango, Nov 10, 2020, 8 replies, in forum: General ME/CFS News
  5. Simon M
    Thread

    USA: INSPIRE Innovative Support for Patients with Covid-19 Registry (ME/CFS outcome measure)

    Post copied from Attitudes of incoming US politicians to ME/CFS and post-Covid 19 illness I did a superficial search to find out whether any of...
    Thread by: Simon M, Nov 9, 2020, 3 replies, in forum: BioMedical ME/CFS News
  6. Tom Kindlon
    Thread

    Symptoms, function and quality of life in myalgic encephalomyelitis/CFS: an Australian based, cross-sectional study, 2019, Donnelly

    From: Dr. Marc-Alexander Fluks B.Sc. Thesis Kate Donnelly Source: University of Tasmania Date: December 2019, online September 2020 URL:...
    Thread by: Tom Kindlon, Nov 7, 2020, 2 replies, in forum: PsychoSocial ME/CFS Research
  7. Andy
    Thread

    USA: NIH funding for ME/CFS research

    NIH Funding for ME in 2020: Falling Flat NIH funding for ME/CFS research should be increasing each year. Everyone agrees that this is needed....
    Thread by: Andy, Nov 6, 2020, 9 replies, in forum: General ME/CFS News
  8. Andy
    Thread

    Fibromyalgia screening in patients with unexplained chronic fatigue, 2020, Aakre

    Women often complain of symptoms of fatigue and generalized aches and pains around menopause. Even though fibromyalgia is more prevalent in...
    Thread by: Andy, Nov 6, 2020, 3 replies, in forum: Fibromyalgia and Connective Tissue Disorders
  9. Dolphin
    Thread

    Long term sequelae following previous coronavirus epidemics O’Sullivan November 2020

    Free full text: https://www.rcpjournals.org/content/clinmedicine/early/2020/11/02/clinmed.2020-0204 Long-term sequelae following previous...
    Thread by: Dolphin, Nov 5, 2020, 0 replies, in forum: Epidemics (including Covid-19)
  10. John Mac
    Thread

    Changes in DNA methylation profiles of myalgic encephalomyelitis/chronic fatigue syndrome patients reflect systemic dysfunctions, Helliwell et al 2020

    Background Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a lifelong debilitating disease with a complex pathology not yet clearly...
    Thread by: John Mac, Nov 5, 2020, 10 replies, in forum: BioMedical ME/CFS Research
  11. Andy
    Thread

    Circulating leptin levels in patients with [ME], [CFS] or fibromyalgia a systematic review protocol, 2020, Musker et al

    Full title: Circulating leptin levels in patients with myalgic encephalomyelitis, chronic fatigue syndrome or fibromyalgia: a systematic review...
    Thread by: Andy, Nov 3, 2020, 9 replies, in forum: BioMedical ME/CFS Research
  12. Sly Saint
    Thread

    Reduced parasympathetic reactivation during recovery from exercise in(ME)/(CFS) - 2015 J. Van Oosterwijck et al

    Not a new study. Reduced parasympathetic reactivation during recovery from exercise in myalgic encephalomyelitis (ME)/chronic fatigue syndrome...
    Thread by: Sly Saint, Nov 1, 2020, 1 replies, in forum: BioMedical ME/CFS Research
  13. Milo
    Thread

    The antinuclear antibody dense fine speckled pattern & possible clinical associations: indicates a proinflammatory environment, 2020, Lundgren et al

    The antinuclear antibody dense fine speckled pattern and possible clinical associations: An indication of a proinflammatory microenvironment...
    Thread by: Milo, Oct 31, 2020, 3 replies, in forum: BioMedical ME/CFS Research
  14. Tom Kindlon
    Thread

    A cohort study of whether parental separation and lack of contact [...] predicts disease severity [...] in young peoples ME/CFS, 2020, O'Donnell et al

    https://adc.bmj.com/content/105/Suppl_1/A188.1 [IMG]PDF Abstracts British association of general paediatrics and YPHSIG (young people’s health...
    Thread by: Tom Kindlon, Oct 31, 2020, 24 replies, in forum: PsychoSocial ME/CFS Research
  15. Dolphin
    Thread

    Adolescents and their parents’ experiences of internet delivered home treatment for chronic fatigue syndrome/me (fitnet-NHS trial),2020, Parslow et al

    https://adc.bmj.com/content/105/Suppl_1/A56.1 G162 Adolescents and their parents’ experiences of internet delivered home treatment for chronic...
    Thread by: Dolphin, Oct 31, 2020, 2 replies, in forum: PsychoSocial ME/CFS Research
  16. Andy
    Thread

    ME/CFS Collaborative Research Centers launch new Community Advisory Committee

    From the NIH MECFS Information List emailing list To foster communication and engagement with ME/CFS stakeholders, the ME/CFS Collaborative...
    Thread by: Andy, Oct 30, 2020, 1 replies, in forum: General ME/CFS News
  17. John Mac
    Thread

    Re-analysis of genetic risks for Chronic Fatigue Syndrome from 23andMe data finds few remain, Bedford et al, 2020 [Preprint]

    Abstract It is tempting to mine the abundance of DNA data that is now available from direct-to-consumer genetic tests, but this approach has its...
    Thread by: John Mac, Oct 30, 2020, 8 replies, in forum: BioMedical ME/CFS Research
  18. Andy
    Thread

    Effect of disease duration in a randomized Phase III trial of rintatolimod, an immune modulator for [ME/CFS], 2020, Mitchell et al

    Rintatolimod = Ampligen A hypothesis-based post-hoc analysis of the Intent to Treat (ITT) population diagnosed with ME/CFS from 12 independent...
    Thread by: Andy, Oct 30, 2020, 16 replies, in forum: BioMedical ME/CFS Research
  19. Andy
    Thread

    The negative impact of the psychiatric model of chronic fatigue syndrome on doctors’ understanding and management of the illness, 2020, Geraghty

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a disabling condition that greatly impacts the lives of sufferers. Many sufferers...
    Thread by: Andy, Oct 28, 2020, 0 replies, in forum: PsychoSocial ME/CFS Research
  20. Sly Saint
    Thread

    Systematic Review of Primary Outcome Measurements for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) in RCTs: 2020, Do-Young Kim et al

    Systematic Review of Primary Outcome Measurements for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) in Randomized Controlled Trials...
    Thread by: Sly Saint, Oct 28, 2020, 3 replies, in forum: BioMedical ME/CFS Research
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