Functional Neurological Disorder (FND) - articles, social media and discussion

https://twitter.com/user/status/1807057489260634381


Here is an important point: if you come on MY posts to argue with me, be prepared to defend your position. If you can't defend your position, don't comment. This will be my last post reinstating the obvious for those who still have doubts or are unclear, unsure or confused:
✔️ POTS is not a psychiatric disorder
✔️ POTS is not functional or "functional neurologic disorder."
✔️ Stress is a major trigger and must be reduced; psychiatric comorbidities must be treated IF/WHEN present
POTS is a neurologic and cardiovascular disorder with multiple symptoms and comorbidities: FND is not a common comorbidity.

Wishing everyone a great day and an exciting #DysConf2024!

 

Crivens! Whut aboot us, ye daftie!

 

Merged thread

My GP told me to get moving after I was paralysed ('FND')

https://www.bbc.co.uk/news/articles/ckgxd88lgy4o

"A man who was left unable to walk or talk by a neurological disorder has called for greater understanding of his condition after he was told to "get moving" by a GP.

Liam Virgo, 22, was 13 when he was diagnosed with functional neurological disorder (FND), which affects how the brain sends and receives information to and from the body.

He was left bedbound for three years by the condition, but is now making a slow recovery and learning to walk again."

(I wonder...)

 

FND really is following in CFS footsteps isn’t it?
Where the researchers and clinicians who came up with it spread stigma far and wide limiting seeds on the breeze.

Then the FND researchers, well inventors or rather re-cyclers if we’re quite honest, publicly complain about this stigma, blamed on some unknown party, this that means other doctors are mean to their (FND) patients, but only we’re told because of these doctors not understanding the construct that our FND researchers have invented.

All problems, and poor patient outcomes, the fault of everyday doctors.
In ignorance of what?
The specifics around FND?
This ruins everything.
They ruin everything.

Except there is nothing to know. There are no specifics . Just knowing that there is no there there. The stigma is built in. There’s no escape. The FND.

I’m so glad many patients recover well from this ordeal. But I really fear for those who don’t. How many people are killed by doctors who saddle them with a ‘no further investigation diagnosis?’


We know what happens to people with ME which is also sometimes greedily devoured by FND researchers. It’s not good. Premature death is going around.

 

I have a friend who was diagnosed with FND which ended up being MS. They said discussing the whole thing with someone skeptical of the concept made them feel validated of their aversion to that label they were given. They also asked if there are any writings critical of FND I could send them. Anyone know something I could send?

 

Tuller has writen a lot about it:

https://www.google.com/search?q=sit...wQYASBf&hl=nb&sourceid=chrome-mobile&ie=UTF-8

 

https://jnnp.bmj.com/content/83/3/248