Gary Burgess A journalist, employed as an on-screen and off-screen Content Editor for ITV News in Jersey & columnist He talks about setting up a new website.... Maybe we should reach out to him, save him a bit of bother. We can be happy that our name is at least better than zonked club
There are actually a zillion ME and CFS websites. Only a few reach critical mass. Some become popular blogs. I think a site that aims purely at relating good and bad experience won't get a lot of traffic. Little of the traffic on popular sites really fits into that category. Few of use want to spend long reading about these things, I think we prefer to give out snippets as we chat with people and learn to trust them. Maybe he has another USP? However if he has the right intent, I wish him well.
Great to see another high profile person 'come out' though, isn't it? And one that is: a) male; and b) doesn't appear to be a fruitcake...
Yes, so long as it actually is ME, no temporary burnout as seems to have been the case with some who then claim a miraculous recovery with some quack treatment. Note - I'm not questioning his diagnosis, just a little wary of celebrity diagnoses in general. Of course I wish him well.
I'm still half expecting him to cure himself, write a book about it, and go on tour to inspire the masses No doubt his intentions are good, but if you've only been sick for a year, you're still at the stage where you need to be learning about the existing ME/CFS community, not trying to create a new one on your website.
I did wonder about his research abilities as a journalist, thinking he has to set something up which, with a little research, he would know already exists.
Very true. Also strikes me as one of the things that most of the healthy don't get and it takes the newbies a long time to come to terms with (understandably) - what's a year when you've started counting in decades? I wish him well. That early on he's got a good chance of seeing some light at the end of the tunnel. Let's just hope that, as a journalist, he'll be curious enough to find out that most of us have been left to rot & used to to further some people's careers.