Health Sense article: Why deny patients with chronic fatigue syndrome treatments that can help?, 2022, by Peter White

Jonathan Edwards said:
Same old tired non-sequiturs.
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Example —

White said:
Some people think that accepting that CBT and GET work implies that CFS/ME is either psychological (so explaining why therapy works) or due to being inactive (so exercise should help). But this is a misunderstanding; CBT and GET are also effective in reducing fatigue and improving function in many medical conditions, such as cancer, multiple sclerosis, arthritis, and lung diseases, where no one would suggest that these conditions are psychological. And we know that GET doesn’t work by improving fitness. It seems to work by gradually removing the fear of engaging with usual everyday activities – gradually getting used to being active again.
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Merged from the PACE trial thread

https://www.healthsense-uk.org/publications/newsletter/newsletter-118/273-118-white.html

Peter White penned this anemic missive defending PACE and the provision of CBT/GET. Amidst a plethora of gems, he seems to argue that he and other BPS ideologues aren’t conflicted because they say they aren’t. It all makes perfect sense if you don’t think about it.

I hope @dave30th dissects this. Also, I saw this article being promoted by Alan Carson because of course it was.
 
Last edited by a moderator:
I submitted a post regarding this blather in a different thread, so the moderators may want to move it.

but I find it astounding that White glosses over the conflict of interest issue by arguing that physicians wouldn’t want to provide ineffective treatments to patients. Of course they wouldn’t, but biases influence whether or not physicians would deem a particular intervention effective. This elementary logic seems so self-evident that only cult like delusion would blind one to its existence. Hence the manifesto by White and the apparent endorsement by Carson.
 
SNT Gatchaman said:
Example —
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That example of White's writing just shows that after all these years White still has no clue what ME/CFS is. He still thinks it's fatigue resulting from deconditioning resulting from fear of exercise.

If that were the case, why does he go on about having to do GET the right way? If someone is deconditioned, the question of whether activity is increased by fixed or flexible increments and whether this is done the right or wrong way according to White, wouldn't arise.
 
Bullshitting without consequences is not normal. No one is denied access to anything, a medical referral is not needed as CBT/GET aren't even medical treatments. If someone wants a course of CBT for themselves, or take up an exercise program, they can do it easily, there are even many apps available today, it's not as if it changes anything. Supervision of any kind is not needed for any of this stuff.

GPs not being able to coerce people into complying with a useless treatment is a completely separate thing from not recommending it while it's still easy to use for anyone who wants to.

This bullshit about depriving people of something that is widely available is a special kind of big lie. It's very revealing that no one calls them out on this. They truly have no shame, but then again when you are used to BS all the time it probably becomes such a habit it feels completely normal. It's basically learned shamelessness.

 
rvallee said:
Bullshitting without consequences is not normal. No one is denied access to anything, a medical referral is not needed as CBT/GET aren't even medical treatments. If someone wants a course of CBT for themselves, or take up an exercise program, they can do it easily, there are even many apps available today, it's not as if it changes anything. Supervision of any kind is not needed for any of this stuff.

GPs not being able to coerce people into complying with a useless treatment is a completely separate thing from not recommending it while it's still easy to use for anyone who wants to.

This bullshit about depriving people of something that is widely available is a special kind of big lie. It's very revealing that no one calls them out on this. They truly have no shame, but then again when you are used to BS all the time it probably becomes such a habit it feels completely normal. It's basically learned shamelessness.

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The denying patients something-angle is interesting given all the things Peter White advocated patients be denied e.g.

"A Selection of points the Barts CF Service made during the NICE Guidelines for CFS / ME"
https://meagenda.wordpress.com/2007...g-the-nice-guidelines-for-cfs-me-tom-kindlon/
 
Just tweeted Caroline who may be off line with covid.
https://twitter.com/BarbR666
pgtipspaulG.jpg
Barbieloo
@BarbR666
·
3m
@Healthy_Control
Caroline, FYI you have beenPGtipped!@PaulGarnerWood An experienced specialist in CFS/ME speak Faulty ideology distorted NICE's procedures Graded exercise therapy helps "by gradually removing the fear of engaging in usual everyday#MECFS #LongCovid -8 citations fu!
 
The best place to counter White's article may be in the next HealthSense Newsletter. I am surprised they published this but they have a 'right of reply' policy. We may be able to do something but this is such old ground it is hard to know what more to say. Carson has been asked to explain his criticism of Caroline original piece and seeing what he has to say may help.
 
Suffolkres said:
Just tweeted Caroline who may be off line with covid.
View attachment 16898
Barbieloo
@BarbR666
·
3m
@Healthy_Control
Caroline, FYI you have beenPGtipped!@PaulGarnerWood An experienced specialist in CFS/ME speak Faulty ideology distorted NICE's procedures Graded exercise therapy helps "by gradually removing the fear of engaging in usual everyday#MECFS #LongCovid -8 citations fu!
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haha. Yes, I find it hilarious (maybe that's not the right word) that his Tweets have no punctuation or grammar and this one seems to be missing a final word....usual everyday what Paul???
 
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