How do you manage monitoring

I used to have a Fitbit and for a while I was doing the free version of visible app. I’m thinking of doing the paid version of visible but I keep forgetting to find out if it covers sleep monitoring yet. I’m not very good at anything that needs conscious input. I can’t maintain a routine of filing paperwork, counting calories or keeping a food diary either nothing to do with having ME/CFS just my brain doesn’t do that stuff routinely without forcing it so I just let it slide.

I would like to see if I can get some evidence of my sleep patterns and how that affects ME/CFS to see if I can use it to get a discussion with a Dr about it.
 
What works for me: Minimal monitoring. Regular rests. Lots of pacing. No tech.

I have a morning rest (an hour), an afternoon rest (2ish hours), an evening rest before shower (30 mins), and a rest after shower (20 mins).

Until I figured that out, things were harder.

At night I briefly note anything notable for that day in a paper diary e.g. pain ↑, cog ↓, "blood test at home", "started [drug] X". That's it. It just helps me notice big things over time.
 
Evergreen said:
What works for me: Minimal monitoring. Regular rests. Lots of pacing. No tech.
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Much the same, except that it's no monitoring. No fixed routine, I take breaks as and when I need them. Some days it's resting for much of the time; other days it's less.

I wouldn't use limited capacity filling in diaries or scoring symptoms unless I'd agreed to do it as part of a trial, and I'm definitely not giving away data to tech companies (other than what's unavoidable).

I have been ill a long time, though, so fairly experienced. I'm also retired and can use a lot of my time any way I choose.
 
NelliePledge said:
I used to have a Fitbit and for a while I was doing the free version of visible app. I’m thinking of doing the paid version of visible but I keep forgetting to find out if it covers sleep monitoring yet. I’m not very good at anything that needs conscious input. I can’t maintain a routine of filing paperwork, counting calories or keeping a food diary either nothing to do with having ME/CFS just my brain doesn’t do that stuff routinely without forcing it so I just let it slide.

I would like to see if I can get some evidence of my sleep patterns and how that affects ME/CFS to see if I can use it to get a discussion with a Dr about it.
Click to expand...
Visible just rolled out basing the morning check in on the nighttime HRV and HR. Is that what you're after?

I find the Oura ring excellent for sleep tracking, as you can view a plot of HR and HRV through the night (rather than one averaged figure). However, i was fortunate to already have one before the subscription model was rolled out, which meant that I don't have to pay the monthly fee. I'm not sure I'd pay for that and Visible. If I had to choose between the two I'd go with Visible (the subscription one) as the live HR tracking and pace point approach has helped make a significant difference to my pacing (even with 8yrs previous experience!).
 
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