"How to support your friend who lives with ME/CFS or long COVID" - Emerge Australia, 2025

Discussion in 'Relationships and coping' started by Dolphin, Apr 25, 2025 at 8:11 PM.

  1. Dolphin

    Dolphin Senior Member (Voting Rights)

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  2. Hutan

    Hutan Moderator Staff Member

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    This isn't bad, I think, there's important content here. It gets better further down when it gets into practical suggestions and notes the range of severities. Some of the content would make a good start for a similar forum fact sheet.

    But
    Emerge surely knows better than that. @Simone, maybe something you could get fixed? There's absolutely no need to get in to unevidenced/speculative biological claims in this resource.


    I also disagree with presenting Long Covid as a single thing, rather than an umbrella description for post-Covid-19 symptoms. If a person meets ME/CFS criteria after a Covid-19 infection, then they have ME/CFS, just the same as someone who meets ME/CFS criteria after glandular fever.
     
    Trish, Utsikt, Sean and 5 others like this.
  3. Hutan

    Hutan Moderator Staff Member

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    Oh, I forgot to mention - there's a stray bullet point at the end that someone at Emerge might want to deal with. A very minor formatting issue.
     
  4. Trish

    Trish Moderator Staff Member

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    I got as far as the claim about cell biology and stopped reading. I agree with Hutan that it's a pity Emerge open themselves up to criticism based on poorly evidenced claims in material that may be otherwise very useful.
     
    Hutan, Sean, Utsikt and 1 other person like this.

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