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Review (Hungary) Interdisciplinary consensus statement about the diagnosis and treatment of [CFS]/myalgic encephalomyelopathy, 2025, Simonyi et al

Discussion in 'ME/CFS research' started by Wyva, Apr 6, 2025.

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  1. Trish

    Trish Moderator Staff Member

    Messages:
    58,786
    Location:
    UK
    I think if I were doing it I would contact the publications as soon able to, and hope that a journalist thinks it's an interesting enough story for them to contact the Ministry to ask for a response they can publish.
     
    Trish, Apr 7, 2025
    #21
    Deanne NZ, rvallee, Turtle and 2 others like this.
  2. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    14,492
    Location:
    Canada
    Second Trish here. This was fair, and excellent, and some harshness is deserved because of the magnitude of the failure here. There are some things that can't be said without sounding like they are accusations, because they simply are.

    I frankly find the quote and the Semmelweis bit to be petulant trolling, and this trolling barely reflects any better than the actual content they put together. I simply don't understand how professionals can be so indifferent to their job. This is simply not professional behavior, and I don't just mean the obvious trolling.
     
    rvallee, Apr 7, 2025
    #22
    Wyva, Sean, Deanne NZ and 1 other person like this.
  3. Sean

    Sean Moderator Staff Member

    Messages:
    8,809
    Location:
    Australia
    When medicine cannot face up to its failures, and having them pointed out by their victims patients.
     
    Sean, Apr 8, 2025
    #23
    rvallee, Utsikt and Wyva like this.
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