I was healthy before illness left me bedridden - it’s exhausting being alive -article in The Scottish Sun

Sly Saint

Sly Saint

Senior Member (Voting Rights)
A MUM has told of how her debilitating condition leaves her feeling 'too exhausted to be alive'.

Claire Hirst from Basildon, West Yorkshire suffers from Myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS).
The 41-year-old has suffered from the condition for 22 years which leaves most sufferers unable to perform normal every-day tasks like taking a shower.

The condition can be so bad it leaves you bedridden and unable to even lift your head off the pillow.

Claire told The Sun: “It gets to the point where it’s too much energy being alive. ME is so cruel; it robs you of everything.

“I would love to be given a magic pill and cured. I’d do anything to be able to go for girly shopping days with my daughter, to go to work full-time and have the energy to live life to the full.”
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Advances have been made in recent years, particularly with its apparent similarities with Long Covid, although because so little is known, many sufferers have been left out in the cold by medics who simply don’t understand the condition.

Despite advances and new guidelines introduced by NICE towards the end of last year, some areas of the medical profession still cling to the out-dated notion that because no cause for the condition can be found it must be psychological and put it down to nothing more than “yuppie flu”.

Claire said: “I don’t see or speak to my GP often now. I appreciate there’s nothing they can do and they don’t understand it.

“I’ve never been to a specialist fatigue clinic. I did look into private fatigue clinics but I can’t see what good it would do. What can they tell me that I don’t already know?”
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https://www.thescottishsun.co.uk/he...ve-illness-bedridden-exhausting-be-alive/amp/
 
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