If a cure for ME/CFS was found tomorrow, would our GPs reach out to tell us?

I suspect you will have to be living under a rock to not get to know there is a treatment before it gets approved for general use.

I suspect the more difficult issue will be to get people diagnosed correctly if the treatment doesn’t also include the discovery of a biomarker.
 
Helicobacter pylori. After this cause of gastric ulcers was identified it took maybe ten years for every GP paying attention before it was common. More on that in the next para. It took maybe twenty years before nearly all doctors were aware, and prescribing appropriate antibiotics.

What made the shift at the ten year mark was patients. They were all over the media about this, and insisted on treatment when consulting with their doctors. This was documented at the time, and I wrote a blog on this at Phoenix Rising. So what we do as a community will have a huge impact.

Getting articles published in major medical journals, including even letters and not papers, will also make a big difference.

Government centric pushing of this might work if there are advocates within government who are aware and are fighting for us.

Finally, I suspect that any treatment that works will not be for everyone. Right now my eyes are on rapamycin, and I am a strong candidate for it working on me, as my mTOR activity is probably stratospheric.

PS The bacterial cause of gastric ulcers was discovered 108 years prior to it being proved. Medicine can run slowly.
 
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