If anyone has taken etidronate (Didronel) what was the effect on MECFS?

[Jaybee00]

This appears to be the candidate drug for inhibiting the itaconate shunt. Wondering if anyone took this for osteoporosis and noticed an effect on their MECFS?

https://en.m.wikipedia.org/wiki/Etidronic_acid

See thread here https://www.s4me.info/threads/stanford-mecfs-working-group-meeting-2023.35124/

 

[Denise]

Given that many people with ME are pretty sedentary because of the limitations ME imposes, it is likely that many of these people are at risk of osteoporosis and might be taking meds for that. Would it have made sense to survey the population first (before studying in depth) to see what effects the meds might have had on PwME and do the same with others who have chronic conditions that make put them at risk
and thus also may be taking this category of meds?

 

[Jaybee00]

https://twitter.com/user/status/1702801371538284793


Looking for any studies that use biphosophonates (i.e. etidronate, alendronate, zoledronic acid) in viral/infectious-onset or related illnesses?