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Illness beliefs of adolescents with CFS and their parents: the perceived causes of illness and beliefs about recovery, 2018,Loades et al (inc Chalder)

Discussion in 'Psychosomatic research - ME/CFS and Long Covid' started by Andy, Aug 18, 2018.

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  1. alex3619

    alex3619 Senior Member (Voting Rights)

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    Umm, medical science? Science, this lot?
     
    alex3619, Aug 28, 2018
    #21
    Inara, Luther Blissett, MEMarge and 4 others like this.
  2. Amw66

    Amw66 Senior Member (Voting Rights)

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    6,959
    @Action for M.E. - please address the 2 year recovery period in your info for GPs, including advising those who have watched - there is so little evidence of this it is both unprofessional and harmful
     
    Amw66, Aug 28, 2018
    #22
    NelliePledge, Luther Blissett, MEMarge and 5 others like this.
  3. Skycloud

    Skycloud Senior Member (Voting Rights)

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    Why? How? Based on what?
     
    Skycloud, Aug 28, 2018
    #23
    NelliePledge, Luther Blissett, MEMarge and 6 others like this.
  4. Hutan

    Hutan Moderator Staff Member

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    32,697
    Location:
    Aotearoa New Zealand
    :rofl: Hmm. So after a life time of successfully recovering from virus infections - mumps, measles, chicken pox, shingles, glandular fever, the annual cold, perhaps a flu, conjunctivitis, plenty more no doubt - when I got a fairly unremarkable gastric flu type illness, I felt helpless about recovering?

    Actually I felt sure I would be recovering any time soon for the first two years or so. And my two children, also survivors of multiple virus infections, although admittedly a smaller selection, also felt sure they would be recovering any time soon.

    I'm quite confident that attributing CFS to a viral trigger had nothing to do with me coming to doubt recovery any time soon. It was the years of illness that did that.
     
    Hutan, Aug 28, 2018
    #24
    fivetowns, Arnie Pye, Keela Too and 13 others like this.
  5. Lucibee

    Lucibee Senior Member (Voting Rights)

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    That looks familiar: "Blaming symptoms on a viral infection conveys certain advantages, irrespective of its validity. It is simple, frequent and easily accepted. ... It is also beneficial to self-esteem by protecting the individual from guilt and blame." - Wessely (1991) [link to more complete quote in another thread here]
     
    Last edited: Aug 28, 2018
    Lucibee, Aug 28, 2018
    #25
    Arnie Pye, Lidia, NelliePledge and 10 others like this.
  6. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    Tom Kindlon, Aug 28, 2018
    #26
    Sly Saint, adambeyoncelowe, inox and 6 others like this.
  7. Luther Blissett

    Luther Blissett Senior Member (Voting Rights)

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    1,678
    Yes, the famous examples of people with HIV is surely proof of this claim that it precludes guilt, blame or social stigma. FFS.
     
    Luther Blissett, Aug 28, 2018
    #27
    ladycatlover, Lisa108, Inara and 11 others like this.
  8. NelliePledge

    NelliePledge Moderator Staff Member

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    Chalder et al regurgitating Wessely what a surprise
     
    NelliePledge, Aug 29, 2018
    #28
    ladycatlover, Sean, Luther Blissett and 3 others like this.
  9. Sean

    Sean Moderator Staff Member

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    9,067
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    Yep. Situation needs that level of response. Start with an immediate suspension of psycho-behavioural treatments of the sort used by PACE and similar trials, especially exercise treatments. Then straight onto the high level, independent, and very public investigations into exactly WTF happened, and why, and how do we make sure its like doesn't happen again.
     
    Sean, Aug 31, 2018
    #29
    ladycatlover, Luther Blissett, MEMarge and 5 others like this.
  10. chrisb

    chrisb Senior Member (Voting Rights)

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    In a sense she is regurgitating herself, as she was one of the "et als", along with Butler and David.
     
    chrisb, Aug 31, 2018
    #30
    ladycatlover, rvallee, Luther Blissett and 3 others like this.
  11. NelliePledge

    NelliePledge Moderator Staff Member

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    Eugh even worse
     
    NelliePledge, Aug 31, 2018
    #31
    ladycatlover, rvallee, Luther Blissett and 3 others like this.
  12. Amw66

    Amw66 Senior Member (Voting Rights)

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    bump - still to have a response to this
     
    Amw66, Oct 30, 2018
    #32
    MEMarge, ladycatlover, NelliePledge and 1 other person like this.
  13. rvallee

    rvallee Senior Member (Voting Rights)

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    "Science", according to psychosocial ideologues.

    [​IMG]
     
    rvallee, Oct 30, 2018
    #33
    ladycatlover, Amw66, Inara and 1 other person like this.
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