Improving Quality in Adult Long Covid Services: Findings from the LOCOMOTION Quality Improvement Collaborative, 2024, Darbyshire, Greenhalgh+

Can you give a link to that please @Midnattsol

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This seems like a positive paper.

I just don't understand Greenhalgh though. Sometimes she seems to get it, but then she's so hostile to patients.

I'm horrified by how she responded to you @Trish. No wonder you are upset.

 

It was an unreasonable and uncalled for reaction to a quite polite request asking for help. Not surprising though, considering her history of mass blocking (often completely unaware) people on Twitter.

 

Wow. I saw it. How disrespectful. Dishonorable, even. But I guess that's the answer: PESE/PEM in Long Covid? Yes, be careful, genuine. ME/CFS, characterized by PESE/PEM? Screw you filthy trolls!

She seems mostly to write those papers to fluff up the reputation of the clinics. There's basically not much else in the string of papers she published. She describes what they do and basically present it as some vignette of how wonderful and smart the people at the clinics are. Skin and bone, zero meat.

 

Imagine if we could charge royalties for inventing and testing 'pacing'.

At the very least people with ME should be credited somewhere?

All the new LC staff getting paid to teach this. Shouldn't they be passing some of the credit on?

 

Everybody's doin' a brand new dance now