Is there a connection between ME/CFS and Sjogren's Syndrome? Discussion and a poll about testing

[Pibee]

Yes, but it makes most sense to keep open the idea that it is one or the other, and maybe that the Sjogren diagnosis is just a red herring - which I suspect it may be in 755 of cases, especially in private practice.

You keep throwing these already disputed arguments so many times. Aubry, @alalush, who was discussed here, was diagnosed by a professor of rheumatology at the University of Ghent. From what I know, the same professor is commonly the chairman of Sjo discussions at EULAR and conducts many trials. (he also posted his medical records on s4me, from the same University hospital)
What is funny, as usually with overly confident professors, it seems that initially (for 5 years lol), she claimed there's not enough proof that SFN is caused by Sjogrens, it is common but not yet recognized, now she claims differently suddenly and acknowledges it's a complication of Sjo (as well as dysautonomia).
Speaking of which, as most rheumatologists, she didn't recognize dysautonomia even when a woman with Sjogrens fainted in front of her eyes . I've never even seen a rheumatologist who knows anything about the autonomic nervous system, and can refer a patient to tests, just because you never ordered tilt table test and can't interpret it, doesn't mean it's not a diagnostic tool.

 

[Jonathan Edwards]

was diagnosed by a professor of rheumatology at the University of Ghent. From what I know, the same professor is commonly the chairman of Sjo discussions at EULAR and conducts many trials.

Yes, well that figures. You may not be familiar with the way medical politics works. No self respecting academic would be chairman of a discussion group full of rheumatologists!

Chairmen of discussion groups are usually our biggest problem.
I have more respect for those who plough their own furrows.