Tilly
Senior Member (Voting Rights)
It worked for me but will attach the word document for you here
-
New Forum Software Installed (Still a few issues but reopening the forum) More details.
Isla Kidd and her family
- Thread starter Robert 1973
- Start date
Tree
Senior Member (Voting Rights)
Thank you! I get the white screen again (with s4me.info in the header).
It’s okay, the letter is in the link too, right?
Last edited:
Tilly
Senior Member (Voting Rights)
There are no words to explain the fear I feel for all our children/young adults as the Government are ensuring support to get them into education or work. BACME and their lack of understanding is going to cause unprecedented numbers of accusations and with ME A accepting or ignoring FND as diagnosis alongside ME, it is going to be unstoppable.
There is no acceptance of MCAS, hEDS EDS, POTS as part of ME. They are not looked for, yet NHS has them listed as diagnosable in their own right so this is another problem.. We need to find ways of recording the data of how many young people suffering with these multisystem changes, when in a PEM state and how that impacts their energy in a graph form or other useful visual. I believe that the Visable app points these changes out well and now they include a sleep part to this, we need to find a way of publicly reporting and insisting that Drs use this app, especially when they state that they need to go to school or accuse mothers of FII etc.
Remember there is no way of recording a child's ability when they are taken into care after a mother is accused. If the child declines in health it is said to be the influence of the mother, fabricating and inducing the illness not an illness that is serious. Their understating from decades of teaching is that a child will get better with determination and push through with tough love.
The young persons lack of engaging with education, therapists such as OT or physios that they believe causes the decline in their illness rather than a disease that causes them to loose energy that will be put before the court. Would anyone be able to explain to the any professional or judge against the teaching of FND; now in every hospital or BACME disordered eating or psychological issues they find in those with cfs ME? It is after all only about perceived fatigue!
Ariel
Senior Member (Voting Rights)
Is there any legal recourse for these cases? ME/CFS is a documented illness and we have the NICE guideline.
I am very worried about the children, too; what are they supposed to do? Is it possible to legally protect them from the state's failure to recognize their disability and health consequences?
I am very worried about the children, too; what are they supposed to do? Is it possible to legally protect them from the state's failure to recognize their disability and health consequences?
Tilly
Senior Member (Voting Rights)
I haven't found any, the state knows what it is doing that is the problem, this is why there has been no change for decades. There are good people out there but they are targeted too
Ariel
Senior Member (Voting Rights)
I wonder what the relevant legislation is. Seems like a human rights violation but I don't know if we have strong protections. Can you appeal to the equality act in this situation? I realize all of that takes money for lawyers and so on that people do not have.
The state would have to insist on claiming she doesn't actually have ME/CFS, no? (And that this is something her mother did?)
The state would have to insist on claiming she doesn't actually have ME/CFS, no? (And that this is something her mother did?)
MrMagoo
Senior Member (Voting Rights)
The argument would be that there are significant concerns the child is being abused, and must be removed from the parent. This would need to be argued to a judge to make an order for removal.
The problem is that the “state” cannot provide the sort of care a child with ME needs, and the child is likely plonked with some foster carers or in a hospital bed.
The removal period would allow time to assess the child away from the parent suspected of FDIA, which is all well and good except when they finally do find there’s no evidence, and the child actually just has ME, you’ve got a much sicker kid at the end of it as well as a traumatised parent.
The problem is that the “state” cannot provide the sort of care a child with ME needs, and the child is likely plonked with some foster carers or in a hospital bed.
The removal period would allow time to assess the child away from the parent suspected of FDIA, which is all well and good except when they finally do find there’s no evidence, and the child actually just has ME, you’ve got a much sicker kid at the end of it as well as a traumatised parent.
That nothing generally shows up in blood tests will only further the accusations against mum .
MrMagoo
Senior Member (Voting Rights)
I think when mum is removed from the situation, yet the problem persists it generally indicated that mum isn’t the problem.
Ariel
Senior Member (Voting Rights)
I mean, how do they ascertain that the problem is persisting in a way they couldn't have ascertained before? If you can deny it before it seems you can just continue to deny it somehow.
It's M.E. Linda
Senior Member (Voting Rights)
MrMagoo
Senior Member (Voting Rights)
There are many cases of children being removed from their family and failing to improve, because objectively the child is the same or worse after time, it’s documented time and time again because the child is ill and the parent isn’t the cause.
Ariel
Senior Member (Voting Rights)
I mean I guess if people are determined they can just say the parent caused the initial illness that the child has not recovered from? But I don't understand why they are acknowledging that the child is ill in the second case and not the first, really. If they are determined not to "believe in" ME/CFS, basically, why do they suddenly accept the child is ill? Just the passage of time away from the parent? How long do you have to be separated from the parent for the alleged effects of FII to go away, according to such people?
MrMagoo
Senior Member (Voting Rights)
Cognitive dissonance is truly stunning
Heads up - found this today during my research - functional cardiac symptoms. Note the date, 21 January 2021 and the authors.
Rogers J, Collins G, Husain M, Docherty M. Identifying and managing functional cardiac symptoms. Clin Med (Lond). 2021 Jan;21(1):37-43. doi: 10.7861/clinmed.2020-0934. PMID: 33479066; PMCID: PMC7850202.
pmc.ncbi.nlm.nih.gov
ETA:
Before there was a RCPCH 2021 updated guideline on FII and FDIA. There was one from the RCP published March 2020. https://www.rcpsych.ac.uk/docs/defa...r-induced-illness-(fii).pdf?sfvrsn=658db320_4
Rogers J, Collins G, Husain M, Docherty M. Identifying and managing functional cardiac symptoms. Clin Med (Lond). 2021 Jan;21(1):37-43. doi: 10.7861/clinmed.2020-0934. PMID: 33479066; PMCID: PMC7850202.
Identifying and managing functional cardiac symptoms - PMC
Recurring chest pain and other cardiac symptoms that cannot be adequately explained by organic pathology are common and can be associated with substantial disability, distress and high healthcare costs. Common mental disorders such as depression and ...
pmc.ncbi.nlm.nih.gov
ETA:
Before there was a RCPCH 2021 updated guideline on FII and FDIA. There was one from the RCP published March 2020. https://www.rcpsych.ac.uk/docs/defa...r-induced-illness-(fii).pdf?sfvrsn=658db320_4
Last edited: