Japan ME Association: " Our Opposition to Proposed National Treatment Guidelines for ME/CFS"

Andy · Jan 21, 2018

Japan faces the same issues as the rest of the world by the look of it.

Japan ME Association held a press conference at the Ministry of Health, Labour and Welfare’s press club on December 14, 2017 to announce our opposition to the public draft of proposed “Treatment Guidelines for ME/CFS for Japan,” issued by the Research Committee for the Development of Treatments and Treatment Guidelines for ME/CFS for public comment. The proposed clinical treatment guidelines for ME/CFS are scheduled to be published in spring 2018 in Nihon Iji Shimpou, one of the most widely read medical journals in Japan. JMEA received a request to submit an external review in November 2017, and we announced our opposition to the proposed guidelines at the press conference. NHK, The Asahi Shimbun, The Sankei Shimbun, Kyodo News, and several regional media outlets attended.

JMEA believes that the proposed treatment guidelines do not provide an adequate, reliable, or safe basis for clinicians in Japan to make treatment decisions for ME/CFS patients in real-life clinical settings. The research committee evaluated various treatments to create the proposed treatment guidelines solely on the basis of a literature review (using an “Evidence-Based Medicine” analysis), with each treatment given an effectiveness grade of an ‘A’ to ‘I’ grade-rating (with an A-grade being the most effective).
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https://mecfsjapan.com/2017/12/15/410/

Webdog · Jan 21, 2018

Japan ME Association (JMEA) said:

The result is a document that merely discusses the results of the committee’s literature review, with no A-grade treatments and with a single B-grade treatment recommendation for Graded Exercise Therapy (GET) (all other treatments mentioned in the guideline document — CBT, antidepressants and other drug treatments, Chinese herbal medicines, and yoga — were rated C-grade or lower)
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Japan ME Association (JMEA) said:

Further, the proposed treatment guidelines pose a risk to worsening the symptoms and overall health of ME/CFS patients in recommending Graded Exercise Therapy (GET) as the single treatment with the highest B-grade rating. In particular, gradually increasing aerobic exercise until the patient can return to their normal lives is recommended.

(The guidelines recommend GET under the guidance of an appropriate instructor. However, as the document acknowledges apart from its recommendation, primary care doctors, rehabilitation specialists, and physical therapists in Japan do not have knowledge or training about ME/CFS or its symptoms.)
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If I'm reading this correctly, the JMEA recommends Graded Exercise Therapy in general and gives it a B rating. However, the JMEA does not recommend GET rolled out as the only national treatment guideline because doctors aren't trained properly.

Invisible Woman · Jan 22, 2018

I have read it differently. The guidelines /recommendations are issued by

the Research Committee for the Development of Treatments and Treatment Guidelines for ME/CFS
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And the Research Committee acknowledge a lack of trained physicians.

The JMEA are saying that the guidelines aren't good enough and that

We are seriously concerned that the mostly highly recommended treatment in the proposed treatment guidelines for Japan will be for Graded Exercise Therapy (GET), a treatment being rejected around the world, and which poses a risk of worsening, and not improving, patients’ symptoms.
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Japan ME Association: " Our Opposition to Proposed National Treatment Guidelines for ME/CFS"

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Japan ME Association: " Our Opposition to Proposed National Treatment Guidelines for ME/CFS"

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