Open John Hopkins Long Covid Study (Survey; Open Worldwide)

Just completed this John Hopkins long covid study survey.

I think it’s worth filling out if you can manage: https://covid-long.com/

should take 10-30 min.

 

The Johns Hopkins Bloomberg School of Public Health is conducting research about how the COVID-19 pandemic has impacted people’s lives, especially around COVID-19 symptoms and recovery.

they have a twitter account too: https://x.com/intent/follow?origina...region=follow_link&screen_name=covidlongstudy

 

I'm having trouble getting onto the survey site. The 'I'm not a robot' keeps throwing me out and the alternative isn't liking me either.
Will try again tomorrow......but if it's the site that has problems, please let me know.

 

I had no problems accessing the survey after completing the "I am not a robot" phase. Took me slightly longer than 30 mins.

Unfortunately, the survey is very bland. As such I don't expect it to be able to pick up anything of relevance. Better surveys had already been conducted by other organisations more than 3 years ago. It seems to be rather focused on psychiatric symptoms whilst neurocognitve symptoms or PEM receive little or no recognition at all. Similary exhaustion and fatigue seem to be automatically attributed to a lack of sleep, whilst the role of reinfection is not studied at all.

Still makes sense to participate for me simply because I hope John Hopkins receives a lot of responses and that could be fruitful sign.

 

Thanks @EndME. I will try again when I am able to.

 

Yeah. I made sure to complain about the fact the survey felt like it was desgined for people who were just mildly disabled from Long Covid ie. having questions assuming I could still do some types of exertion.

I also made sure to complain about the fact PEM was not included. But I think it’s these kind of responses from us that might make the authors realise what they missed out on and mention it in the study:keep it in mind for next time around.

 

I'm having major problems getting onto the survey. After multiple attempts I seemed to have satisfied visual challenge but I never reached the survey. Will try a hard reset and then retry the survey when able.

 

Maybe try a different browser/try removing add blocker?

It did take some time to load for me and seemed a bit clunky.

Worked on safari mobile for me though. @Binkie4