survey

Association between physical activity before SARS-CoV-2 infection and functional disability 24 months after COVID-19: findings from the SulCOVID-19 longitudinal study Abstract Background Individuals diagnosed with coronavirus disease 2019 (COVID-19), even those with mild illness, report...

Medical invalidation is associated with structural barriers in postacute immune mediated syndromes based on patient perspectives in Germany Abstract Post-acute immune-mediated syndromes (PAIMS), including Long COVID/Post-COVID (LC/PC), Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...

Patient-reported harm from NHS treatment or care, or the lack of access to care: a cross-sectional survey of general population prevalence, impact and responses Abstract Objectives The aim of this article is to provide an estimate of the proportion of the general public reporting...

Prevalence, trends, and correlates of long COVID in mainland China after the policy shift: findings from two cross-sectional surveys Abstract Background The long-term consequences of the Chinese COVID-19 wave in 2022 remain unknown. To clarify the health outcomes of COVID-19 survivors after...

Post-COVID-19 Condition in Swiss Healthcare: Disparities in Access, Delays in Care, and Patient Burden Abstract Background: Post-COVID-19 Condition (PCC) causes persistent multisystem symptoms, reduced quality of life, and high healthcare needs. Data on patient experiences in Switzerland are...

664. Attitudes about COVID and Community Engagement with Patients (ACCEPt): Global Survey Reveals the Ongoing Impact of Long COVID-19 on Medically Vulnerable Populations, Five Years On Abstract Background COVID-19 continues to disproportionately impact medically vulnerable populations. To...

Abstract: Background Various chronic health conditions are associated with household vulnerability to food insecurity. There is limited evidence regarding the prevalence of food insecurity or the experiences and challenges related to nutrition and food access among people living with Myalgic...

Not a lot of details about it, but the European Public Health Association is running a survey of Long Covid. It's a recruitment phase, not a study results. There is a forum for recruitment in ME/CFS studies but not LC, although it definitely crosses over from the definition they use. Few...

P Gamillscheg, A Laszewska, K Hoffmann, J Simon, S Mayer Abstract Background Long COVID-19 patients experience a multitude of complex symptoms for an extended time, therefore often requiring increased medical care. Despite the global incidence of around 400 million (2023), little is known about...

UK Action for ME Big Survey 2025 Quoted from the Action for ME website: __________________ Our 2025 Big Survey is now open The survey will close at 11.59pm on Tuesday 27 January 2026. Please make sure that you have finished the survey and submitted your responses before this date. We have...

Now published - see post #17 Abstract: Background/Objectives: Patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) may report abnormalities in voice and speech; however, no formal research has been conducted in this area. Methods: An online mixed-methods survey was...

Full title: Understanding symptom clusters, diagnosis and healthcare experiences in myalgic encephalomyelitis/chronic fatigue syndrome and long COVID: a cross-sectional survey in the UK Maedeh Mansoubi, Thomas Richards, Martine Ainsworth-Wells, Russell Fleming, Phaedra Leveridge, Charles...

Abstract Background: This study aims to explore the perceptions and clinical approaches of pain management specialists toward myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a condition characterized by persistent fatigue, widespread pain, unrefreshing sleep, and autonomic...

Evaluation of a survey exploring the experiences of adults and children with ME/CFS who have participated in CBT and GET interventional programmes https://www.meaction.net/wp-content/uploads/2019/04/NICE-Patient-Survey-Outcomes-CBT-and-GET-Oxford-Brookes-Full-Report-03.04.19.pdf FINAL REPORT...

Abstract: Chronic fatigue syndrome or myalgic encephalomyelitis (CFS/ME) is a medical condition characterized by severe and prolonged fatigue that is not relieved by rest or attributed to any underlying medical or psychological condition. Individuals with CFS/ME are considered to have an...

Behavior Assessment System for Children, Parent Rating Scales (BASC- PRS) is being used by a current study investigating omics in young people with ME/CFS. I thought it would be useful to have a closer look at it. It is a 173 item survey that parents fill out about their child. It costs over...

[I was told this survey is quite long, like over an hour, but can be paused at any time. It’s also open to people outside of austria] https://s2survey.net/pais/index.php?l=eng&q=base&htR=AwA%3D The Following are quotes: What do we want to achieve with this study? This study, sponsored by the...

Background: The high global burden of Long Covid (LC) has significant implications for population wellbeing, healthcare, social care and national economies. Aim: To explore associations between patient sociodemographic and health characteristics with two outcomes: reporting having LC and...

part of the 10 year reform plan for the NHS. Survey etc Change NHS

Post copied from MEA news. From the MEA's latest newsletter: MEA link: https://meassociation.org.uk/6dso Survey: https://forms.gle/TsQBGBYKxMGeb1eS6