Long Covid in the media and social media 2023

I put some clips on Twitter

https://twitter.com/user/status/1671172687459241984


And the full segment on YouTube

https://www.youtube.com/watch?v=v_j5kf1Dq0w

 

Went alright until they started about exercise.

 

https://twitter.com/user/status/1671624028401041408

 

Post copied to
United Kingdom: Independent SAGE

 

Podcast: The Rest is Politics. Ep "Question Time: The War On Drugs, a Tory Green Party, and Long Covid". 2 min segment @24:00.

Qn: "Lack of research funding for long Covid has broad implications if many are unable to work because of an illness that has been denied and psychologised."

 

Here's the clip

https://twitter.com/user/status/1671799370256138240

 

https://twitter.com/user/status/1672234761325281281

 

Saw this on twitter - link to tweet is in the quote block.

Text: "This paper about the impact of Long Covid on language & cognitive function is frankly devastating. A couple examples of how affected individuals fared when confronted with photos of objects & asked to name them. Lots of struggling & pauses."

Here's the link to the study she's talking about, not sure if we have a thread for it yet (didn't see it).

https://www.sciencedirect.com/science/article/pii/S2949903823000015

 

Long Covid sufferers feel forgotten three years on

https://www.bbc.com/news/uk-wales-65952112

I didn't read the whole thing but there's a photo of a patient's list of their symptoms. I remember during those first 3-4 years thinking that if I was careful to record all my symptoms then eventually the doctors would figure it out the diagnosis and I'd get treatment.

Toward the end I saw this

"Although there are no long Covid clinics in Wales, it said rehabilitation services could be accessed through GPs"

I have no idea why news articles keeps mentioning rehabilitation services!

We know that exercise doesn't help (at least not the Long Covid patients with PEM/PESE and/or a diagnosis of ME). And it usually makes things worse. So what kind of rehab are they talking about?

 

Probably not this article, but it probably came from the same source. It's a CDC study saying LC contributes to the labor shortage.

CDC: Research Says Long Covid “Contributing” to Labor Shortage
https://tech.co/news/cdc-research-long-covid-labor-shortage

It seems they discussed this in a call: https://emergency.cdc.gov/coca/calls/2023/callinfo_061523.asp.

And as any expert worth their salt knows, you can't understand what you don't measure, and you can't solve what you don't understand. LC is still not being measured, it's barely estimated and usually with heavy bias. So of course it hasn't been solved.

Solving problems requires putting a sincere effort based on real data and a process that builds expertise based on experimentation and results. And we keep seeing articles that talk about the useless clinics are basically having solved it all already, so fake results are fed back in the loop as valid data. No system can function when you throw garbage at it tagged as valid data. Never works. Never happened.

It is a blind spot for policymakers. It's not a coincidence, the experts tasked with informing policymakers are part of the coverup.

 

Was it this article?
https://www.nrk.no/rogaland/sterk-s...efravaer-med-trotthet-og-slapphet_-1.16443369

It's based on a recent press release from NAV which has more details and statistics: https://www.nav.no/no/nav-og-samfun...orona-og-sykefravaer-med-trotthet-og-slapphet

 

Guardian: Health bosses warn of heart disease emergency in England

That's excess cardiovascular deaths, not acute Covid.

Definitely a factor, but I think too much emphasis on explanation via the indirect path risks mis-targeting research and understanding.

 

Thread from Dr. Binita Kane saying history of treatment of children with ME is repeating itself with Long Covid:

 

TYMEs Trust were doing a lot of work on this (I'm guessing Binita Kane is aware); they (Jane Colby) seem to have gone very quiet. Nothing on their twitter ac/website for over a year?

 

WHO: Nearly 36 million in Europe suffering from 'long COVID'

One in 30 Europeans may have developed "long COVID" in the first three years of the pandemic, the World Health Organization's (WHO) European office said on Tuesday, warning that the coronavirus has not gone away.

Since 2020, nearly 36 million people in the European region are believed to have contracted long-lasting health problems after being infected with COVID-19, the global health body said.

Addressing a press conference in Copenhagen on Tuesday, WHO regional director Hans Kluge stressed that "long COVID remains a complex condition we still know very little about."

He described the condition as a "glaring blindspot in our knowledge." To understand COVID-19 more accurately, there is much more need to be done, he added.​

 

“I got every shot they would give me, quickly took Plaxlovid and ended up with LC anyway. People do recover, but 85% of patients who have symptoms 2 months after COVID are still symptomatic after a year.”

https://hellgatenyc.com/nyc-has-left-people-with-long-covid-behind