Long COVID & Post Infectious Syndrome ECHO sessions (University of Utah)

ahimsa

ahimsa

Senior Member (Voting Rights)
Posts moved from USA: News from the Bateman Horne Center

A new video on Post Exertional Malaise (40 minutes) has been posted on the Bateman Horne Center YouTube channel:



From the video description field:
May 17, 2022
Bateman Horne Center has partnered with the University of Utah Health to conduct a Long COVID and Post-Viral Syndromes ECHO (Project ECHO). This series delivers information to healthcare professionals utilizing short didactics and case-based learning to enhance their ability to manage patients with long COVID, ME/CFS, FM, and related comorbid conditions.

In this presentation, Brayden Yellman, MD, reviews:
- The definition of PEM
- PEM presentation in post-acute sequelae of COVID-19 (PASC/long COVID), ME/CFS, and related post-viral syndromes (PVS)
- Triggers and PEM onset
- The science behind PEM: VAT reductions, decreased aerobic metabolism, altered cellular metabolism, neurobiological changes, dorsal midbrain activity post-exercise
- Clinical implications of PEM
- How to clinically manage PEM

Note to community members: We advise viewers to always speak with their medical care team prior to making any adjustments or changes to their current regimen.

Bateman Horne Center’s involvement in this program is made possible with the additional support of the Open Medicine Foundation.
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ahimsa said:
A new video on Post Exertional Malaise (40 minutes) has been posted on the Bateman Horne Center YouTube channel:
Click to expand...
I thought the description of PEM was really good, the bit about CPET was fine, and the message about trying to avoid PEM was good too.

I was less impressed by the middle bit where findings from studies were presented to try to explain what is happening in PEM. Two old studies by Alan Lights' team were presented - things like gene expression studies that, if I recall correctly, we were not entirely convinced by. And then there were various brain studies, with specific bits of the brain mentioned, and various words thrown around like self-referential thought and threat awareness and flight or fight. I'm not sure the presenter fully understands how preliminary most of this stuff is. I know he's a doctor treating ME/CFS patients, so it must be tempting to feel that he knows things about the illness, but right now, it is more accurate to say that not a lot is known for sure yet.

And I wasn't sure about the recommendations for drug treatments - LDN was one. There was no mention of ibuprofen, which is what I turn to when things are really bad.

I'll be interested to hear what others thought.
 
Two videos about orthostatic intolerance, part of the Project ECHO series for PASC (Long COVID) and Post-Viral Syndromes, have been posted to the Bateman Horne Center YouTube channel:

Orthostatic Intolerance Part 1: Diagnosis

From the video description:
May 31, 2022

Bateman Horne Center has partnered with the University of Utah Health to conduct a Long COVID and Post-Viral Syndromes ECHO (Project ECHO). This series delivers information to healthcare professionals utilizing short didactics and case-based learning to enhance their ability to manage patients with long COVID, ME/CFS, FM, and related comorbid conditions.

Brayden Yellman, MD, addresses the assessment of orthostatic intolerance (OI) syndromes:
- OI syndromes and physiologic happenings
- Patient presentation
- Triggers
- Assessment tools and testing
- Hours of Upright Activity (HUA)
- Cognitive impact (testing results, research, ways to assess)

Note to community members: We advise viewers to always speak with their medical care team prior to making any adjustments or changes to their current regimen.
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Orthostatic Intolerance Part 2: Management

From the video description:
June 14, 2022

Bateman Horne Center has partnered with the University of Utah Health to conduct a Long COVID and Post-Viral Syndromes ECHO (Project ECHO). This series delivers information to healthcare professionals utilizing short didactics and case-based learning to enhance their ability to manage patients with long COVID, ME/CFS, FM, and related comorbid conditions.

Brayden Yellman, MD, addresses management of orthostatic intolerance (OI) syndromes:
- Recognizing and avoiding common triggers
- Management approaches: increase intravascular volume, improve venous return,
maintain intravascular volume, increase cardiac input and improve cardiovascular tone
while avoiding PEM (post-exertional malaise)
- Case presentation

Note to community members: We advise viewers to always speak with their medical care team prior to making any adjustments or changes to their current regimen.
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Hutan said:
I thought the description of PEM was really good, the bit about CPET was fine, and the message about trying to avoid PEM was good too.
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I thought it was good, too - although there is an aspect of PEM (at least for me) which I feel like I don't see mentioned much, if at all. When it was at its worst, my experience of PEM was not just one of weakness and exhaustion. There was this pervasive sense that I should not move at all - or at least as little as possible. This sense was somewhat akin to not wanting to move when you have a sunburn - or something like the way your muscles feel the day after static exercise, like skiing. It's just weird in the way that it's not that you can't move, but that you're getting a very strong warning not to move or you'll get worse.
 
Project Echo
Long COVID & Fatiguing Illness Recovery Program - Monthly Session
Description
A CDC-funded monthly webinar-style ECHO learning session to rapidly disseminate Post-acute Sequelae of COVID-19 (PASC) and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) findings and emerging best practices

University of New Mexico's Privacy Statement: https://privacy.unm.edu/privacy.statement.html
Mailchimp's Terms of Use: https://mailchimp.com/legal/terms
Time
You can choose to attend one or more of the following webinars.
Oct 13, 2022 01:00 PM
Nov 10, 2022 01:00 PM
Dec 8, 2022 01:00 PM
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Webinar Registration
https://echo.zoom.us/webinar/register/WN_bahjLohdT42ZKuVEEsHD5w
 

New ECHO Recording Available to Watch Now!


Long COVID and Post-Viral Syndromes ECHO: Pediatric and Young Adults


What is an ECHO?


Developed by Dr. Sanjeev Arora in 2003 at The University of New Mexico, Project ECHO (Extension for Community Healthcare Outcomes) is a collaborative medical education and care management model designed to provide best-practice specialty care to more people.


An ECHO is a forum for health care professionals to come together, creating a network of knowledge, through case-based lectures & didactics.


Bateman Horne Center and University of Utah Health ECHO teams host this excellent case-based learning series illuminating strategies for assessment and management of Long COVID (PASC), ME/CFS, and related comorbid conditions.


In this presentation Dr. Alba Azola and Dr. Melanie Hoppers discuss pediatric and young adult cases of Long COVID & ME/CFS.


  • Review recent epidemiological data on Long COVID in the young adult population
  • Describe the proposed pathophysiologic mechanism involved in Long COVID
  • Special considerations for assessment and management of LC in adolescents and young adults (AYA)
  • Case discussions

Note to community members:

We advise viewers to always speak with their medical care team prior to making any adjustments or changes to their current care regimen.

https://twitter.com/user/status/1760443395368276062
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New video posted on the Bateman Horne YouTube channel:

Pediatric & Young Adults, Part 1: Diagnoses & Management

Summary:
Bateman Horne Center and the University of Utah Health Project ECHO teams join forces once again to provide a case-based learning series illuminating strategies for assessment and management of Long COVID (PASC), ME/CFS, and related comorbid conditions.

Patient cases are shared in this session for educational purposes. In some instances, the information does not relate to an individual and instead represents a compilation of disease presentation. In cases involving individual patient information, the patients have authorized the discussion of their case in this setting.

This ECHO session dives deep into managing Long COVID and ME/CFS in children/pediatric populations.

Melanie Hoppers, MD (Bateman Horne Center) examines challenges and opportunities in treating children with Long COVID and ME/CFS. She addresses how to navigate clinical uncertainty, evaluate for post-exertional malaise (PEM) and orthostatic intolerance, and offers treatment recommendations while recognizing the lack of research in pediatric populations. She outlines pharmacological and non-pharmacological options for managing symptoms while avoiding and managing post-exertional malaise (PEM).

Key topics include:

• Identifying, minimizing, and managing PEM when treating children with Long COVID with ME/CFS

• Differential diagnosis for Long COVID with ME/CFS

• Assessment and treatment of orthostatic intolerance and Mast Cell Activation Syndrome (MCAS)

• Description of a patient case with practical application of assessment and treatment strategies

• Pharmacological and non-pharmacological options for managing symptoms
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This webinar, recorded on Nov. 4, 2025, is part of the University of Utah Project ECHO series for Long Covid & Post Infectious Syndromes

 
I don't see a thread for the Long COVID & Post Infectious Syndrome ECHO sessions. If I missed it then please move this post - thanks!

The website showing the schedule for monthly sessions - first Tuesday of every month - is here:

Long COVID & Post Infectious Syndrome ECHO

physicians.utah.edu physicians.utah.edu
The University of Utah Project ECHO team will provide training, mentorship, and support to learners on the current best practices and evidence-based care management of patients with PASC (Long COVID) and Post Infectious Syndromes. The CDC and AAPM&R predict between ten to thirty percent of people who had COVID-19 will go on to develop Post-Acute Sequelae of COVID-19 (PASC), also known as Long COVID. Currently, between 3 - 10 million Americans are experiencing symptoms associated with post-viral syndrome.

This series aims to equip healthcare professionals, of varying skill levels and specialties, with adequate knowledge and tools to effectively approach and manage the care of patients with Long COVID without relying solely on Post-COVID Care Clinics. Applying what we know from other post-viral syndromes such as ME/CFS, early and informed interventions ensure disease manageability and improved patient outcomes.
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The ECHO learning model features case-based learning. Case presentations allow for a collaborative learning environment where everyone has an opportunity to learn, and everyone has an opportunity to teach. Anyone can submit a case.
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Sessions are recorded but there appears to be a bit of a delay before the recording is posted.

The next session is "CPET & Metabolic Dysfunction with Long COVID" on Tuesday, April 7, noon - 1 pm Mountain Time.
Speakers are Todd Davenport and Staci Stevens.

Registration link
(this should show the time in your time zone)
 
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It looks like this is just for clinicians and is a collaboration between University of Utah staff and Bateman Horne Center.

ABOUT PROJECT ECHO
Salt Lake City, UT

Connecting community providers with health care resources
It all began in 2003 in New Mexico, with a mission to improve health care in rural and underserved populations, by connecting community providers and specialists to eliminate barriers to access to specialty care. With limited-to-no specialty care available in most rural areas, patients can wait for months and travel hundreds of miles to be seen by specialists in a tertiary care center. A lack of access to affordable, quality care can lead to inappropriate and costly utilization of the health system (e.g., frequent ER visits) and, more importantly, to poor health outcomes for individuals.

Project ECHO addresses these issues by training community providers through HIPAA-compliant, technology-enabled collaborative learning to address specialty care-level health concerns in the primary care setting. Multi-disciplinary specialist teams use videoconferencing technology to conduct weekly or bi-weekly sessions with community providers to discuss specialized health care topics. During these clinics, community providers present patient cases to determine the best treatment options. This case-based learning has shown to improve patient health outcomes and provider confidence in treating both common and complex conditions in their communities.

There is no cost associated with participating, and the only requirements to join an ECHO session are access to a computer or mobile device with connection to the internet. Additionally, there are free Continuing Medical Education (CME) credits available for those who participate. Full instructions for claiming CME are available in the CME Learner Information Packet.

The University of Utah was the third site in the world to replicate the ECHO model™ – in 2011 – in an effort to better serve patients in the Mountain West.
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Trish said:
It looks like this is just for clinicians and is a collaboration between University of Utah staff and Bateman Horne Center.
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Thanks for adding that info! I was pretty sure that patients were not meant to attend but there might be some forum members here who could.

And for folks who are able to watch videos these sessions are recorded and posted online afterwards. (although there seems to be a bit of a delay lately)
 
Long Covid Project ECHO

CPET and Metabolic Dysfunction in Long COVID

Bateman Horne Center has partnered with the University of Utah Health to conduct a Long COVID and Post-Infectious Syndromes ECHO (Project ECHO). This series delivers information to healthcare professionals utilizing short didactics and case-based learning to enhance their ability to manage patients.

Tuesday, April 7, 2026

12 PM to 1 PM MT

Invite your health care provider to Long Covid Project ECHO
 
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