Long term outcome in patients with Functional Neurological Disorders, 2022, Siafaka

[Dolphin]

https://www.researchgate.net/profil...f37878b3e87b32593/Long-term-follow-up-FND.pdf

Muscle Biopsy meeting Frenchay Hospital

Long term outcome in patients with Functional Neurological Disorders

C. Siafaka1 , V. Shukla1 , B. Hameed1 , A. Majumdar1 1Department of Paediatric Neurology,

Bristol Royal Hospital for Children, Bristol, UK Correspondence to:

Charoula.Siafaka@UHBristol.nhs.uk

Each of the 3 case studies had CFS among other conditions

 

[NelliePledge]

More waste of people’s time and effort

 

[SNT Gatchaman]

Might be slightly less of a complete waste of time and effort if they gave any indication of how long "long-term follow-up" actually was. From the case illustrations, I'm guessing it was 3-5 years.

 

[Hoopoe]

Was the CFS defined as fatigue, or as per IOM/CCC/ICC?

With these studies, if you can't see how they defined CFS, you never know if there is any relevance to ME/CFS or the authors are just using CFS to mean that the patient had bad fatigue.

 

[CRG]

Was the CFS defined as fatigue, or as per IOM/CCC/ICC?

With these studies, if you can't see how they defined CFS, you never know if there is any relevance to ME/CFS or the authors are just using CFS to mean that the patient had bad fatigue.

Bristol Children's Hospital (BCH) is part of the same Medical School as Esther Crawley - senior author of the FND poster is also a Bristol Medical School lecturer and, while proximatey doesn't imply familiarity, Crawley's office is just down the hill from BCH. I think it's a safe bet on how CFS in these patients was defined.