Open (MA, USA) “Brain Scan Study [PET-MR] of ME/CFS, 2023, VanElzakker

I hope pwME who are able, will volunteer for this study.

I don't know if they will get copies of their results, but if they do, this might go some way towards indicating a biomedical problem, which may in turn be of assistance with evidence of disability.

 

I've just paid for a Facebook ad to try to recruit for this study.
See this thread here: https://www.s4me.info/threads/advoc...studies-that-are-struggling-to-recruit.35898/

 

Way too far for me, and maybe it's for Americans only. I think a fair fraction of the population of NA lives on the east coast, so there should be some volunteers.

 

I thought it said Boston area. It might help if they'd cover travel expenses, then they could recruit outside Boston metro.

 

It seems odd that there is a shortage of volunteers as the Massachusetts ME/CFS Association is a large active group.

 

I participated in this study in the Long Covid arm but I fulfill the criteria and consider myself to have ME/CFS as well. I was not located in Boston but was still able to participate. They do give you a copy of some of the scans but it's hard to know what to do with them. Michael VanElzakker was great, very understanding and willing to explain the study at length.

 

New-ish webpage
https://rally.massgeneralbrigham.org/study/me_cfs_patients_need