Hip
Senior Member (Voting Rights)
SUMMARY: I am asking what are UK ME/CFS patients here doing about their State Pension contributions? Are you paying these out of your own savings?
I developed ME/CFS as well as a whole set of mental health symptoms (depression, severe anhedonia, moderate to severe generalized anxiety disorder, and some mild psychosis on some days), as well as severe ADHD after a viral brain infection I had in 2005. This brain infection also caused some brain damage and some loss of mental faculties.
These symptoms and conditions were certainly severe enough to prevent me working, but I never attempted to get disability support such as Personal Independence Payment (PIP), as firstly I was hoping my health would soon improve and my brain would heal (which it has not to any great degree).
And secondly because I read that PIP discriminated against people with mental health, and that it was hard to get PIP if you have mental conditions. And I was certainly in far too frail a state of mental health to take on a fight with the PIP companies (Atos or Capita).
As a consequence, I've not had any state financial support since I developed ME/CFS and this array of mental health conditions. Fortunately I have been living with elderly parents (who are now in their 80s), and thus had very little daily expenditure.
But my question here is about UK State Pension contributions, which I have not paid since developing ME/CFS, due to not working.
In order to keep my State Pension up to date, I have been told by HM Revenue & Customs I need to pay the backdated contributions for the last 11 years, at a cost of around £700 per year. So that will amount to around £8,000. Unfortunately that will have to come out of my savings, as there does not seem to be any disability support for pension payments.
I read that even if you get PIP, it does not cover your UK State Pension contributions (though I understand your State Pension contributions are paid for you if you are receiving unemployment benefit).
So my question is, what are other UK ME/CFS patients here doing about their State Pension contributions? Are you paying these out of your own savings?
Last edited: