Managing fatigue in postural tachycardia syndrome (PoTS): The Newcastle approach

[MeSci]

Source: Autonomic Neuroscience
Preprint
Date: February 22, 2018

URL:
https://www.sciencedirect.com/science/article/pii/S1566070217303284

http://www.autonomicneuroscience.com/article/S1566-0702(17)30328-4/fulltext

Managing fatigue in postural tachycardia syndrome (PoTS): The Newcastle approach

Victoria Strassheim(1), Jenny Welford(2), Rob Ballantine(3), Julia L. Newton(4,5,*)

1 Fatigue Cresta, Newcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle, UK
2 Occupational Therapy, Newcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle, UK
3 Research and Development, Northwick Park Hospital, Harrow, UK
4 Institute of Cellular Medicine, Newcastle University, Newcastle, UK
5 Research & Innovation Hub, Newcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle, UK

* Corresponding author. Institute of Cellular Medicine, The Medical School, Newcastle University, Newcastle, UK.

Email: julia.newton@ncl.ac.uk

Received: December 3, 2017
Received in revised form: February 21, 2018
Accepted: February 21, 2018
Published online: February 22, 2018

Abstract

Fatigue is a significant symptom that is frequently reported by those with postural tachycardia syndrome (PoTS). There are a variety of reasons why those with PoTS might experience fatigue and as a consequence an individualised approach to management is most appropriate.

In this chapter we will examine the prevalence of fatigue in those with PoTS, its overlap with conditions such as chronic fatigue syndrome and describe a clinical approach to the management of fatigue in those with PoTS.

Keywords: Fatigue, Activity, Multidisciplinary

 

[Jenny TipsforME]

Has anyone been able to read the full pdf?

 

[Trish]

I hit a paywall when I tried to access the full text.

 

[voner]

bump! @Jenny TipsforME, @Trish.

I was able to access this paper via sci-hub.la using its doi #...

https://doi.org/10.1016/j.autneu.2018.02.003

haven't read it yet,though.

 

[Trish]

Thanks for trying, @voner. That link redirected me to the journal, with only the abstract available free.

 

[voner]

Thanks for trying, @voner. That link redirected me to the journal, with only the abstract available free.

Trish,

did you go to the sci-hub site and then enter the doi # into their search bar? That works for me...

 

[Trish]

Oops, sorry, no - I'm an idiot. I didn't read your post properly.

 

[voner]

I am browsing the artcile and this paragraph jumps out.

It is our group's experience that once PoTS physiology improves, people with CFS/ME are then able to exercise, suggesting that it is the orthostatic intolerance keeping PoTS patients less active rather than an unwillingness to exercise in the first place.

To me, this is a pretty confusing and muddled statement.

 

[voner]

then they later say...

It can often be difficult for clinicians and patients to understand the opposing treatment paradigms in POTS and CFS. In the former, exercise is encouraged; in the latter, exercise is sometimes discouraged. This conflict is often addressed in our clinic by individualising treatment programmes, ensuring the appropriate balance between activity and rest, something that varies from one person to another.

 

[Hoopoe]

Link to paper

https://sci-hub.hk/https://doi.org/10.1016/j.autneu.2018.02.003