ME Association: Very Severe ME: It’s Time for Something New! By Greg Crowhurst

ME Association: Very Severe ME: It’s Time for Something New! By Greg Crowhurst

https://www.meassociation.org.uk/20...mething-new-by-greg-crowhurst-16-august-2019/

This is the first of a series of blogs looking at pertinent issues regarding Very Severe ME and builds on Greg’s own experiences caring for his wife, Linda. It follows his recent contribution to Severe ME week.

I have cared day and night for my wife who has lain in unspeakable torment, torture and agony, for twenty-six years. The personal cost to us both because of M.E. has been enormous.

Communication is broken on every level. As soon as she has spoken, she forgets what she has said.

If I speak or ask a question it can cause unimaginable confusion and head-pain, shaking spasms, and deterioration…

 

@Jonathan Edwards

 

That`s a terribly long time.. Two lives put on hold.. So much respect for them both.

 

Thank you Greg.
Sobering to read, but so important that these things are said.
xx