ME/CFS biobanks currently accessible to researchers?

[Tom Kindlon]

An Irish researcher is interested in making a grant application in response to the WE&ME Foundation funding call. They have asked me for Irish physicians who they may be able to work with. I will of course make suggestions. But whether any of these largely private providers will be interested is not clear. There aren’t many of them.

So I thought I would mention biobanks with ME/CFS samples. Apart from the CureME biobank in the UK, what other ones are currently available to outside researchers? For example, is the one in Norway available? Is the Dutch one up and running? Or the one in Austria? Links and/or email addresses would be great. Cheers.

 

[Utsikt]

I don’t know if this works but I’ll post it just in case:

AusME Registry & Biobank – Emerge Australia

emerge.org.au

 

[Chandelier]

German biobank specialized in adolescents and children.
Not sure if accessible to researchers outside of Germany.

Post in thread 'News from Germany'

Jun 9, 2026

https://www.dnn.de/lokales/dresden/dresden-uniklinikum-baut-kinderbiobank-fuer-long-covid-forschung-aus-MTX2MAE4DFBDJE7DZ7YLSIWZME.html

Dresden Biobank Specifically Collects Samples from Children and Adolescents

A pediatric biobank for Long COVID research is being established in Dresden. Blood, urine, and hair samples are being collected there to help researchers better understand the causes of the condition.

Yes, they are also collecting samples from severe patients at home, let’s go!

According to the University Hospital, patient samples such as...

• Chandelier

• 

 

[Midnattsol]

In Norway there is also the biobank at Haukeland university hospital.

 

[MinIreland]

An Irish researcher is interested in making a grant application in response to the WE&ME Foundation funding call. They have asked me for Irish physicians who they may be able to work with. I will of course make suggestions. But whether any of these largely private providers will be interested is not clear. There aren’t many of them.

So I thought I would mention biobanks with ME/CFS samples. Apart from the CureME biobank in the UK, what other ones are currently available to outside researchers? For example, is the one in Norway available? Is the Dutch one up and running? Or the one in Austria? Links and/or email addresses would be great. Cheers.

Which Irish physicians would you recommend, @Tom Kindlon ? Asking for a friend .

 

[Ciofox]

... Or the one in Austria? Links and/or email addresses would be great.

mecfs-biobank@meduniwien.ac.at is the team of Eva Untersmayr based in Vienna