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ME/CFS International Research Symposium, March 2019, Australia

Discussion in 'BioMedical ME/CFS News' started by Simone, Nov 26, 2018.

  1. lansbergen

    lansbergen Senior Member (Voting Rights)

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    1 I will send you a PM

    2 It can but I have not found that yet. Other peroxides are a possibility

    4 Levamisole scavenges hydrogen peroxide and superoxide.

     
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  2. Alvin

    Alvin Senior Member (Voting Rights)

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    I understand, i am not ready to try highly dangerous things but if i was near death the calculus changes.
     
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  3. intrepidation

    intrepidation Established Member

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    There are more but some are differentially expressed between tissues. I wonder if multiple could be at play?
     
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  4. Hutan

    Hutan Moderator Staff Member

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    Copied from another thread:

    Heidi is indeed an excellent CEO, and Emerge is doing great work.
     
    Lidia, MEMarge, andypants and 9 others like this.
  5. wastwater

    wastwater Senior Member (Voting Rights)

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    Maybe it’s a FOXO1 trap
    There’s many pathways under its control,I just saw that insulin and leptin are mentioned and remember leptin mentioned in M.E
     
    Last edited: Mar 22, 2019
    Amw66 likes this.
  6. Trish

    Trish Moderator Staff Member

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    I've lost track of this. Have the individual talks been put on You Tube or is that not the plan? I'd like to watch them.
     
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  7. Andy

    Andy Committee Member & Outreach

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    My understanding is that this is still the plan but haven't seen any notification that they have been uploaded yet.
     
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  8. MyalgicE

    MyalgicE Senior Member (Voting Rights)

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    Yes, good questions, the producers were receptive to being briefed on what’s happened in Australia recently, which always helps.
     
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  9. MyalgicE

    MyalgicE Senior Member (Voting Rights)

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    I understand he was, he did Alison Hunter’s autopsy: https://www.ncbi.nlm.nih.gov/pubmed/27091026/

    Professor Barrie Marmion founded the Adelaide Q-fever Research Group in 1980 and developed the highly effective Q-fever vaccine prophylaxis programs with CSL Ltd and State Health Departments. During 1953-56 together with Sir Michael Stoker FRS Cambridge they had identified subacute Q-fever endocarditis as the first recognised long-term sequel to acute Q-fever. Professor Marmion later identified the post Q-fever (infection) fatigue syndrome (QFS) as a second significant chronic complication, with the influence of immunogenetic variation on the development of QFS and Q-fever endocarditis and associated cytokine dysregulation.
     
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  10. MyalgicE

    MyalgicE Senior Member (Voting Rights)

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    This was one of the things ME Australia requested in our meetings with Minister Hunt, and he agreed to. While we were disappointed he wasn’t there in person, it was good he appeared by video.
     
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  11. MyalgicE

    MyalgicE Senior Member (Voting Rights)

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    Last edited: Apr 7, 2019
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  12. Andy

    Andy Committee Member & Outreach

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  13. Trish

    Trish Moderator Staff Member

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    Many thanks to Emerge for producing such a well organised and easy to navigate website dedicated to the conference. I look forward to exploring the speaker biographies and conference documents and watching all the videos from the 3 day event.
    @Simone
     
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  14. Andy

    Andy Committee Member & Outreach

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  15. Simone

    Simone Senior Member (Voting Rights)

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    The team have worked really hard on the website, and did a brilliant job pulling it together!
     
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  16. Trish

    Trish Moderator Staff Member

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  17. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  18. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Dr. Ron Davis of Stanford on the devastating impact of ME/CFS



    "The patients have been ignored for a very long time. ... If you get ME/CFS your life as you know it is over, and that is really sad because it hits people in the prime of their life. ... It's an extremely serious disease."
     
  19. JohnTheJack

    JohnTheJack Moderator Staff Member

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  20. Marylib

    Marylib Established Member (Voting Rights)

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    All I have to say is, beware of doctors who think that fooling with your thyroid hormones can help you be "less fatigued." I ran into one of those before I was diagnosed in NZ. And they are everywhere. The current flavor of the month is giving you T3 or liothyronine. While stranded in the USA, because I developed POTS, I thought I would briefly give that a whirl, and I have hair loss now. If I had stayed in NZ, and had not become curious, that would not have happened. Oh well, there is not point in having regrets, I suppose. All any of want is to feel better. I am naturally curious but my specialist in NZ has always cautioned me against fooling around with thyroid hormone.
     
    Last edited: Jun 2, 2019

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