ME/CFS International Research Symposium, March 2019, Australia

1 I will send you a PM

2 It can but I have not found that yet. Other peroxides are a possibility

4 Levamisole scavenges hydrogen peroxide and superoxide.

 

I understand, i am not ready to try highly dangerous things but if i was near death the calculus changes.

 

There are more but some are differentially expressed between tissues. I wonder if multiple could be at play?

 

Maybe it’s a FOXO1 trap
There’s many pathways under its control,I just saw that insulin and leptin are mentioned and remember leptin mentioned in M.E

 

My understanding is that this is still the plan but haven't seen any notification that they have been uploaded yet.

 

Yes, good questions, the producers were receptive to being briefed on what’s happened in Australia recently, which always helps.

 

I understand he was, he did Alison Hunter’s autopsy: https://www.ncbi.nlm.nih.gov/pubmed/27091026/

Professor Barrie Marmion founded the Adelaide Q-fever Research Group in 1980 and developed the highly effective Q-fever vaccine prophylaxis programs with CSL Ltd and State Health Departments. During 1953-56 together with Sir Michael Stoker FRS Cambridge they had identified subacute Q-fever endocarditis as the first recognised long-term sequel to acute Q-fever. Professor Marmion later identified the post Q-fever (infection) fatigue syndrome (QFS) as a second significant chronic complication, with the influence of immunogenetic variation on the development of QFS and Q-fever endocarditis and associated cytokine dysregulation.

 

This was one of the things ME Australia requested in our meetings with Minister Hunt, and he agreed to. While we were disappointed he wasn’t there in person, it was good he appeared by video.

 

Dr Elisha Josev’s presentation was not streamed but if you are interested, this is the study she spoke about:
https://meaustralia.net/2016/03/03/australian-research-into-mecfs-in-adolescents-ccc/
Hopefully it will be published soon, with reviewers at the moment I’m told.

 

Conference website, with links to all talks, now up, https://mecfsconference.org.au

 

Alternatively, Emerge's YouTube channel is here, https://www.youtube.com/channel/UCvZdgIX7WW0Vm0uOYy0k70Q, which is where the videos are hosted.

 

The team have worked really hard on the website, and did a brilliant job pulling it together!

 

https://twitter.com/user/status/1120740850315689984

https://twitter.com/user/status/1120689711486521344

 

Dr. Ron Davis of Stanford on the devastating impact of ME/CFS

https://www.youtube.com/watch?v=63ERNV1Bjoo

"The patients have been ignored for a very long time. ... If you get ME/CFS your life as you know it is over, and that is really sad because it hits people in the prime of their life. ... It's an extremely serious disease."

 

All I have to say is, beware of doctors who think that fooling with your thyroid hormones can help you be "less fatigued." I ran into one of those before I was diagnosed in NZ. And they are everywhere. The current flavor of the month is giving you T3 or liothyronine. While stranded in the USA, because I developed POTS, I thought I would briefly give that a whirl, and I have hair loss now. If I had stayed in NZ, and had not become curious, that would not have happened. Oh well, there is not point in having regrets, I suppose. All any of want is to feel better. I am naturally curious but my specialist in NZ has always cautioned me against fooling around with thyroid hormone.