ME/CFS Music

forestglip

forestglip

Senior Member (Voting Rights)
Staff member
YouTube has been recommending a bunch of music by people with ME/CFS and I'm surprised by how much of it is really good. So I'm making a thread to compile songs about ME/CFS or music videos that are focused on ME/CFS.


Can You Hear Me? | A Song for #MillionsMissing | ME Awareness

I'm lost inside this well of pain
Can you hear me?
Can you hear me?
Far behind this wall of shame
Can you hear me?
Can you hear me?

I'm shouting out for help
Can't get through to no one else
Oh, can you hear me?
Say that you can
I'm drowning in the echoes
of my voice within these walls
Oh, can you hear me?
Say that you can
Say that you can
Say that you're there

I'm frozen in forgotten time
Can you hear me?
Can you hear me?
Here watching as the world goes by
Can you hear me?
Can you hear me?

I'm shouting out for help
Can't get through to no one else
Oh, can you hear me?
Say that you can
I'm drowning in the echoes
of my voice within these walls
Oh, can you hear me?
Say that you can
Say that you can
Say that you care

A million voices missing
Trying to be heard
Searching for the answers
To be part of this world
A million voices missing
Dying to be heard
Praying for a second chance
For the life they deserve
A million voices missing but together we'll be heard

Oh, can you hear me?
Say that you can
Can you hear me?
Say that you can

Here behind these walls
I won't be silenced anymore

A million voices missing today
A million voices missing to say

We’re shouting out for help
Can't get through to no one else
Oh, can you hear us?
Say that you can
We're drowning in the echoes
of our voices in these walls
Oh, can you hear us?
Say that you can
Say that you can
Say that you can
Say that you'll take the time to listen
Say that you hear us
Say that you hear us
Say that you hear us
That you hear the millions missing...

Here behind these walls
We won't be silenced anymore

We're a million voices louder today
With our million voices, together we'll say
(Together hear us say)
Can you hear me?
Say that you can
Can you hear me?
Say that you can

We're breaking down these walls
We won't be silenced anymore

We're a million voices louder today
And our million voices matter
Today


Still Loud Project feat. Dagmar Lauschke: WAS WIR WOLLEN [WHAT WE WANT]

We want to feel the sun on our skin, the wind in our hands
No longer lying behind tightly closed windows and doors
We want to tear open the windows and shout loudly:
"Here I am! What I want is to live
What I want, I will get"

We want to finally go outside
Receive life, free ourselves from the chains
We wouldn't be trapped anymore
No one would say anymore "you just want to lie around"
We wouldn't have to prove anymore:
We love life, we love life, we love life

We want to go on vacation
Go hiking, jump into the sea
Bring our favorite souvenirs home with us
We wouldn't just see pictures - we'd be there ourselves
We wouldn't just dream anymore - that would be over

We want to hear the birds chirping and children laughing
Noise on the street wouldn't bother us anymore
We could fully enjoy all sensations again
Wouldn't have to close our eyes and ears for protection anymore

We want to have wild parties
Dance until our feet hurt
The next day we can rest and recover
The strength is there, the pain is gone
Rest would have a purpose again
We love life, we love life

We want to bake in winter and grill in summer
Satisfy our hunger for companionship in every season
We want to celebrate birthdays and Christmas too
Want to laugh so much that our belly hurts

We want to bring them out - the old shoes and jackets
Have waited so long to unpack them again
Want to run barefoot through the summer rain
Finally get lost again in the vastness of life
We love life, we love life

We want to drink coffee and go out to eat
Not just long for it every day anymore
We want to go to movies, museums, concerts
Be able to get up early afterwards

We want to buy fresh rolls from the bakery [man zwischen Brötchen vom Bäcken - unclear phrase]
Recover from work on the sofa
We want to go to the hairdresser - all such things
Go to school, study, do an apprenticeship

We want to have wild parties
Dance until our feet hurt
The next day we can rest and recover
The strength is there, the pain is gone
Rest would have a purpose again

We want to hug and kiss our dearest grandma
And not have to worry about our condition afterwards
We want to have children, hold them and carry them
And not just say "someday" anymore

We look forward and not back anymore
We save happiness for the bad days
And when we're old, we want to tell stories
See our memories in an album
And remember how good we had it
We'll be proud of ourselves that we fought
For what we want - what we want is clear:

We want life back the way it once was
We want to celebrate parties, dance until our feet hurt
The goal is clear, there's still a [Schlü - unclear word, possibly "Schlüssel" meaning key]
We're getting our life back

We want to have wild parties
Dance until our feet hurt
We're tackling it - come join us
Together we'll take the final step



A song for ME: Blowin' in the Wind

How many years can a man live in pain
Before he will wither and die?
And how many lives must an illness destroy
Before you will see through the lies?
Yes and how many voices must scream from the dark
Before you take heed of our cry?

The answer, my friend, is blowin' in the wind
The answer is blowin' in the wind.

How many times must an idea fail
Before it is seen to be flawed?
And how many flaws must a trial embrace
Before it is seen as a fraud?
Yes and how many wounds must its victims expose
Before they're no longer ignored?

The answer, my friend, is blowin' in the wind
The answer is blowin' in the wind.

How many times must a story be told
Before you will see what is true?
How many people must live in this way
Before it will dawn upon you?
Yes and when will the burden of loss and despair
Reflect in the things that you do?

The answer, my friend, is blowin' in the wind
The answer is blowin' in the wind.

How many lives must a theory destroy
Before you will see through the lies?
How many years can a man live in pain
Before he will wither and die?
Yes and how many voices must scream from the dark
Before you take heed of our cry?

The answer, my friend, is blowin' in the wind
The answer is blowin' in the wind.
 
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Dear ME/CFS by Hallie Walker

Dear ME/CFS,

I feel like I just met you,
But we shared a home for 19 years.
A fly on the wall gettin' bigger and growin' uglier.
Right now you're taking too much space for my taste.
So i'm gonna kindly ask you:
To get the fuck out

The lights turn on and his brain turns red.
A rush of pain and sharp adrenaline to his head.
And nowhere to lay down in a sleepless bed.
When there's nothing but more to feel tomorrow.
There's nothing but more to feel tomorrow.

Why'd you have to ruin it this way?
Why'd you have to come and kill the day?
Millions are missing,
I fear.

Just need a simple answer.
Why are you here?

You really think it's funny?
You can hide in the dark cause there's no money.
Takin' lives and jobs and loves and mobs
With your crash, crash, crash
And your
Burn

The lights turn on and his brain turns red.
A rush of pain and sharp adrenaline to his head.
And nowhere to lay down in a sleepless bed.
When there's nothing but more to feel tomorrow.
There's nothing but more to feel tomorrow.

Why'd you have to ruin it this way?
Why'd you have to come and kill the day?
Millions are missing,
I fear.

Just need a simple answer.
Why are you here?

Sincerely,
Me


ME/CFS SONG

This is a song about my life
I just always sit inside
Because I’ve got ME
Nobody really understands
And they don’t give a damn
And they say there’s no known cure for me

I’ve got chronic muscle pain
Brain fog and migraines
My battery has no power

Every noise is really loud
I can’t go out in a crowd
And it’s a marathon to have a shower

I’m hot then I’m cold
Only 23 years old
So I googled for a cause

I’m angry then I’m sad
Then I’m happy then I’m mad
And google says “you have menopause”

Every light is really bright
I watch Netflix day and night
I said goodbye to the gym

One doctor said go home and knit
And I thought you are full of it
And that’s the last time I ever saw him

So Mum took it upon herself
Bought every vitamin off the shelf
Vitamin A, B and C

And D and E
And X, Y and Z
And all I get is fluro coloured wee

My life was already low
Then Mum made me go Paleo
And drink raw celery

Yeah my life’s in a rut
And I’m tryna fix my gut
So my Dad home brews kombucha for me

Everyone’s got advice
And they don’t ever think twice
About having their say

Why don’t you just go outside?
Take a walk, take a ride?
And I just say thank you and go away

I was doing alright
Until one Doctor prescribed
Antibiotics

Now I’m all stuffed up
And I have oral thrush
And what’s the bet it’ll end up in my crouch

I’ve got pain in my chest
It’s Costochondritis
It’s like being stabbed with a knife

One Doctor said not to stress
All you have to do is rest
I said what do you think I’ve been doing all this time?!

You know you’re pretty sick
When there’s a pandemic
And your life doesn’t really change

Don’t complain to me dear
I’ve been home bound for years
Oh Jesus would you please give me grace!

When you really look at it
Life can be a piece of...
Hard bloody work and pain

But it’s also great
In so many ways
And I’m so glad you listened to my song today

This is a song about my life
I just always sit inside
Because I’ve got ME
So let’s raise awareness
For this illness
And help all the millions missing like me
 
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Writing a little song about M.E/C.F.S & fibromyalgia. Fade.

[Can't understand first line]
My strength's gone, it won't hold me
I'm waiting for the morning, love.
My thoughts run wild, but I can't get out my head.

I'll push on through, but my legs just too exhausted.
I'm waiting for another life
To take me someplace that I know
To take me on, so I won't feel at all

But we'll fade
And our minds still hold on strong
In the candles burning light
Time is passing us away
But we'll never lose it
Oh, oh, oh, oh
But we'll never lose it
Oh, oh, oh, oh

We'll fade
But our minds still hold on strong
In the candles burning light
Time is passing us away
But we'll never lose this fight.


Invisible Truck Video

Woke up today
Energy low
Nothing to say
Nothing to show

Woke up this morning
Running on fumes
Walls of this house
My prison room

Oh, it's a hit and run
Run out of luck
Run over again and again
By the invisible truck

Woke up today
How do I feel?
It's a roll of the dice
A spin of the wheel

I asked my doctor
What should I do?
Give me an answer
Give me a clue

Cause it's a hit and run
Run out of luck
Run over again and again
By the invisible truck

Sometimes I fade to black
Before the day begins
But I'll get my power back
I'll get the plug back in

Livin' on hope
Biding my time
Makin' the most
Stretching a dime

Living on hope
That I will rise again some day
Crossing the road
I have to look both ways.

Oh, it's a hit and run
Run out of luck
Run over again and again
By the invisible truck

Oh, it's a hit and run
Run out of luck
Run over again and again
By the invisible truck
 
Wonderful, @forestglip, thank you. I haven't managed to listen to many of them yet, but these people are very talented.
I enjoyed Sarah's song in post#3 very much, she has a terrific voice. And the German Still Loud song in post#1 is powerful, it had me in tears, also sung by someone with a great voice.
 
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