Steven Molony is an actor, writer, and filmmaker who makes all of #MEAction’s videos in addition to supplying voiceover. He is an ally to people with myalgic encephalomyelitis, Long COVID, and other chronic illnesses. Jaime Seltzer is #MEAction’s director of scientific and medical outreach and she does research for Stanford University on ME and other complex chronic diseases. She is a person living with ME, and ME runs in her family with both her mother and sister affected. EPISODE 1: MEGHAN O’ROURKE AND THE INVISIBLE KINGDOM EPISODE 2: FIONA LOWENSTEIN EPISODE 3: #MILLIONSMISSING 2022 EPISODE 4: MAYO CLINIC EPISODE 5: RYAN PRIOR AND THE LONG HAUL Chronically Complex: The #MEAction Podcast - #MEAction Network
Trial by Error by David Tuller After Last Year's Tub Talk, Here's an Interview-Clothed-for #MEAction's Podcast quote: ...here is my clothed interview with Jaime, #MEAction’s director of science and medical outreach, and Steven, the filmmaker who produces the organization’s videos–about my work, my background, and whatever else. (Of course, since this is a podcast, no one would actually know if if I were in a tub–but I wasn’t.)
'complex chronic disease' 'chronically complex' I may be signed on to a losing battle in trying to keep the word 'complex' away from ME/CFS. I don't think a label of 'complex' is at all helpful. It can be easily taken to mean that there are both biological and behavioural/psychological issues causing the condition. Not knowing the etiology of a disease is not the same as the disease being complex. Great interview @dave30th and Jaime.
It was a good interview, very interesting to hear David’s journey from journalism to public health and his reactions when tried to get responses from BPS brigade. I actually don’t mind the word complex, speaking for myself, it is a complex presentation of symptoms and can take doctors time to tease them out especially when trying to consider the best symptomatic relief medication due to often high side effects to meds available. Many patients have complex presentations due to comorbidities and aging. Complexity is often because of the effect of one medicine for one physical system on another system. In psychiatry, often complexity was having multiple medical disorders outside the primary psychiatric diagnosis, or having several psychiatric diagnoses. In medicine, it is the same and all diagnoses need to be treated with care and diligence.
New episode available (Season 2, Episode 8) with guest Cynthia Adinig, a marketing specialist turned Long COVID advocate. https://www.meaction.net/chronically-complex-meaction-podcast/