https://metro.co.uk/tag/you-dont-look-sick/ A weekly series published every Sunday telling the stories of people with invisible illness and disabilities. I hope they will do one for ME/CFS
You Don't Look Sick: 'People say ME isn't real but trust me - it is' By Laura AbernethySunday 28 Apr 2019 9:03 am https://metro.co.uk/2019/04/28/dont-look-sick-people-say-isnt-real-trust-deal-everyday-9328821/ hardly a mention of the 'f' word
A reasonable piece - well done if you're a member here People keep telling me I don't look ill either, it's happened once this year already. I don't meet or talk to a lot of people lol. That said, it doesn't make any difference to my circumstances if people think I look ill, or not. The number of ATOS reports where a doctor writes that I look ill is, well, all of them. and it's never made a difference. I do have one observation - 3 days for wearing pajamas is considered a long time between washes? Wow - I thought I was doing well managing to push changing them down to every week or so (obviously unless I spill something lumpy on them) Nobody ever tells anyone these things, I just wash them when they bug me, or when other washing needs to be done if there is space.
Moderator note. Several posts have been deleted as way off topic and as responses to a post that the poster (me) deleted.
I've just got around to reading the whole article. I think it's excellent. Well done to Jenny McGibbon for being willing to talk about her experiences so clearly. And it's really good to see a clear description of ME with PEM properly described at the top of the list of symptoms. Good to see the MEA referenced too - I assume they provided the symptom description.
Another one: ‘Having M.E. is like you’ve ran a marathon with the flu and were beaten up afterwards’ From the article:
These are great quotes @Lisa108 I took a screen shot to send to my irritatating relatives and ignorant friends. No one wants to read a website or watch Unrest. And they've still no bloody clue, after 12 years. This is so succinct. Her blog looks really good too. Helpful. mummyingandme.com
Just twigged that it's the free paper you can pick up when getting the London Underground, the Manchester Metro (tram), and probably public transport in cities I've not been to. How brilliant to do a series to high-light that sometimes the healthy looking people taking, and remaining in, the seats designated for elderly, pregnant and disabled people on public transport aren't the rude and selfish bleeps you think. But it should be in a weekday issue! Commuter days, to reach a bigger audience.
Rather critical error in early paragraph: "PoTS is caused by an abnormal response to the autonomic nervous system, which means blood is not pulled downwards when you sit or stand up and there is a drop in blood supply to the heart and the brain." Otherwise not bad for the press.
