Monitoring app: Eureka Health

[rvallee]

Copied post

No idea who is behind this but the idea seems coherent:

Why do so many doctors, policies, research studies, and products miss the mark? They don’t listen to the people they’re trying to actually help. The patients. Today, we’re taking a small step to integrate the patient voice deeply into our product. #LongCovid #pwME

 

[Sly Saint]

No idea who is behind this but the idea seems coherent:

hm I'm not sure. looks like they are just flogging supplements(?)
https://eurekahealth.com/

 

[Shadrach Loom]

hm I'm not sure looks like they are just flogging supplements(?)
https://eurekahealth.com/

And Wim Hof breathing exercises, apparently. A salutary reminder that “we listen to the patient” is the clarion call of woo and snake oil merchants as well as - in very rare cases - voices of reason.

 

[Sean]

Some seem to have mistaken the recognition of the legitimacy and value of PROMs (Patient Reported Outcome Measures) with elevating them to unchallengeable status.

They still need to be adequately controlled with either blinding or objective outcome measures.

 

[Wyva]

They also seem to have a "similarity score", meaning similarity of people participating. A lot of this seems to be based on Reddit posts, basically what people reported there about the different treatments they tried.

 

[NelliePledge]

So if Reddit posts are considered useful do they include any time element in their assessment of how useful. Are subsequent reports by the same person used to validate or downgrade an initial report? Do they follow up with people who give positive reports and then no further posts to try to establish outcomes. Do they give more weight to a retrospective report of experience with an outcome than to a report within a month of starting something? If all mentions are equal where’s the value as an information source.

 

[shak8]

First staff member listed on Eurekahealth's website is Richard Kravitz, MD and here is a profile with his publication history:

https://profiles.ucdavis.edu/richard.kravitz