Muscle fatiguability after exertion

[T&O]

… this is me too. Thank you for this discussion and links.

Recently was made more aware of protein - yes, agreed, def helps those carb cravings, also felt an infinitesimal improvement ,mind and body being more at ease if not more energetic…
still chronic pain and ,as DHagen, heavily fatigued.
You are so right Hoopoe, DockaGirl, with not clocking ongoing pain, its your “normal” when part of daily life .
(Finding it harder ,the longer Im ill, to fill in patient forms when off to a new dentist or getting a scan etc., as so much is normal).
I admire everyones interest and energy in nutting out reasons… trying to unravel our issues. Guess thats the point of this site .

 

[Jonathan Edwards]

Dark times that I hope stay behind me, but I never thought for a moment that it was a block at CNS or PNS level. At the time it felt very muscle-level, albeit subjectively and for what it's worth.

I keep coming back to the case of cataplexy and its relation to REM sleep paralysis. In sleep paralysis we feel it is the leg muscles that will not work, trying to run away from danger. Respiratory muscles are excluded from cataplexy and REM paralysis. Cataplexy switches on and off without needing a shift in muscle biochemistry. Subjective fatiguability in ME/CFS often comes and goes - at least according to members' posts. Events at a hypothalamic level are completely hidden from our sensorium. All our experience is presented to us in terms of limbs or higher self.

 

[tuha]

Moved post
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I dont know if I would call it muscle weakness or fatiguability. I think we have strength in our muscles but there is no stamina. And the strength is there only for a really short time. What is also bizzare that you can regulary exercise a muscle but you will improve very little stamina of that muscle.

I also think that it has nothing to do with PEM. I get PEM few times a year but these muscle problems are there every day.

I can walk 6000 steps a day but especially in my calfs I feel every day kind of muscle soreness but I think it's different from what I felt when I was healthy and I overexercised. I ask if it' s not the same feeling like by restless legs syndrome. And I have daily cramps in my calfs.

These muscles problems were always a big mystery for me. Before I was sportman and I often overexercised but the problems and feelings after overexercising in the muscles were different.

 

[Alinda]

My muscle fatiguability only happens during PEM, most remarkably it happens in my tongue and chewing muscles, which causes a lot of difficulty chewing something like bread. The first few bites are fine, but after that it becomes increasingly difficult to the point even things like talking are impossible.

The same happens when brushing my teeth manually or walking/standing for too long. But only during PEM, I get very little symptoms that feel related to muscles outside of PEM.

 

[T&O]

Events at a hypothalamic level are completely hidden from our sensorium. All our experience is presented to us in terms of limbs or higher self.

That may be theoretically correct but its not my experience.
I get this particular dull headache in association with overall inflammation, swollen glands, tight chest or restricted breathing if you will, temperature swings etc and to answer the question Im always asked (when covering current symptoms with my acupuncturist) is that its a central headache ,and truely feels like the discomfort begins around the center of my brain (in comparison to the front of brain ,typically a gut or upset digestion headache, or over one eye leading to migraine style pain).