A young person who thinks there are effective treatments for cfs.
https://bmjpaedsopen.bmj.com/content/5/1/e001165
https://bmjpaedsopen.bmj.com/content/5/1/e001165
A young person who thinks there are effective treatments for cfs.
https://bmjpaedsopen.bmj.com/content/5/1/e001165
The treatment of CFS is incredibly effective if people are able to access it.
I don't get a good sense of how much improvement this person has had in their level of function and over what period of time. (Did they say how long they have been sick?)
Basic sleep hygiene has not helped most of the PwME I know.
Also apparently they don't get PEM from cognitive activities as they can read and listen to music and both when "resting" but couldn't do their schoolwork. Not sure what to make of that.
....Also apparently they don't get PEM from cognitive activities as they can read and listen to music and both when "resting" but couldn't do their schoolwork. Not sure what to make of that.
The cognitive load of 'passive' reading (i.e. leisure) is vastly different IME to that of 'active' reading (i.e. trying to learn).
As is the cognitive load of trying to understand something new (where it's important to get it right or it's pointless) vs reading a story (where it doesn't matter).
Reading isn't just about seeing and recognising words.
I often struggle with both types (I haven't read a book recreationally for years as the drain is too high, high enough so it causes memory issues etc. making it a pointless activity if sustained). Non recreationally I dip into things on occasion, the most frequent being this place but I can't handle threads/posts above a surface level (so a lot of the more 'technical' threads/posts are completely beyond me).
I am surprised that others are not aware of the difference between different types of reading content and the different drains they cause.
That said whilst I suspect the original blog was written by a 16 year old I doubt it is entirely 'his own work'.
The cognitive load of 'passive' reading (i.e. leisure) is vastly different IME to that of 'active' reading (i.e. trying to learn).
As is the cognitive load of trying to understand something new (where it's important to get it right or it's pointless) vs reading a story (where it doesn't matter).
Reading isn't just about seeing and recognising words.
I often struggle with both types (I haven't read a book recreationally for years as the drain is too high, high enough so it causes memory issues etc. making it a pointless activity if sustained). Non recreationally I dip into things on occasion, the most frequent being this place but I can't handle threads/posts above a surface level (so a lot of the more 'technical' threads/posts are completely beyond me).
I am surprised that others are not aware of the difference between different types of reading content and the different drains they cause.
That said whilst I suspect the original blog was written by a 16 year old I doubt it is entirely 'his own work'.
It seems that youthful authors get a free pass on being factually correct - although I guess we have seen even professors given the same latitude.The treatment of CFS is incredibly effective if people are able to access it.
I guess this is where things are headed now - the appropriation of the term 'energy management' as effectively meaning GET. As described here, it is GET - the finding of the baseline, the patient-blaming 'boom and bust' terminology, the gradual increase, the requirement to do the baseline regardless of how ill the person is, the patient-blaming, life-restricting and harmful focus on sleep hygiene.My treatment came in the form of energy management, which is the process of sustaining energy levels by preventing the ‘boom and bust’ cycle, followed by gradual increase in energy levels. This means you have to meet your baseline even on bad days and try not to exceed it even on good days. Managing the ‘boom and bust’ cycle involves a lot of relearning the basic rules to healthy sleep/resting, many of which you probably take for granted or even ignore if you are not struggling with CFS. These include having a set bedtime/wake-up time, not napping for longer than 30 min, maintaining a good bedtime routine, stopping work early, resting regularly, etc.
It's written as though energy levels always miraculously gradually increase. That's the frustrating thing - they actually will for most people with post-viral fatigue syndrome, especially young people, without any BPS intervention at all.which is the process of sustaining energy levels by preventing the ‘boom and bust’ cycle, followed by gradual increase in energy levels
I wonder what the intended readership of BMJ Paediatrics is. How many 16 year olds are aware of the journal, and how many read it? Do many 16 year olds wake up one morning and decide, unprimed, to write a piece for the BMJ. Does the priming have to be done before application of the gloss?