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treatment

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  1. Sarah94
    Thread

    Daridorexant - treatment for insomnia

    One of my doctors informed me today that this drug has been recently approved by NICE and is going to try me on it for my sleep issues. He said it...
    Thread by: Sarah94, Jan 25, 2024, 51 replies, in forum: Other treatments
  2. Braganca
    Thread

    Rapamycin Pilot Treatment Trial for ME/CFS

    https://www.simmaronresearch.com/rapamycin-trial The First Biomarker-Driven Treatment Trial for ME/CFS Subsets Mean Success Until now, the...
    Thread by: Braganca, Nov 11, 2023, 28 replies, in forum: ME/CFS research news
  3. Kitty
    Thread

    Preprint "The idea of rehabilitation needs to be completely rethought for this disease" A qualitative analysis of patients' experiences, 2023, Hammer et al

    From @MSEsperanza: "The idea of rehabilitation needs to be completely rethought for this disease" A qualitative analysis of patients'...
    Thread by: Kitty, Nov 7, 2023, 6 replies, in forum: Long Covid research
  4. Dolphin
    Thread

    Trial Report Exercise capacity in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) treated with long-term pyridostigmine, 2023, Systrom

    https://erj.ersjournals.com/content/62/suppl_67/PA4639 Exercise capacity in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) treated...
    Thread by: Dolphin, Nov 1, 2023, 6 replies, in forum: ME/CFS research
  5. EndME
    Thread

    Disease Modifying Therapy (IMU-838) to be trialled in Long Covid

    A team in Germany is planning to launch a trial with the drug IMU-838 trial for Long Covid. Currently there aren’t too many details on the trial,...
    Thread by: EndME, Oct 13, 2023, 1 replies, in forum: Long Covid news
  6. EndME
    Thread

    Review Epstein-Barr virus-acquired immunodeficiency in myalgic encephalomyelitis-Is it present in long COVID?, 2023, Ruiz-Pablos et al

    Epstein-Barr virus-acquired immunodeficiency in myalgic encephalomyelitis-Is it present in long COVID? Abstract Both myalgic encephalomyelitis or...
    Thread by: EndME, Sep 18, 2023, 19 replies, in forum: Long Covid research
  7. Andy
    Thread

    Two-month period of 500 mg lecithin-based delivery form of quercetin daily dietary supplementation counterbalances CF symptoms: 2023 Rondanelli et al

    [Approx 25% of participants had LC] Background Chronic fatigue (CF) is a complex phenomenon without clear etiology that may require long-term...
    Thread by: Andy, Sep 17, 2023, 8 replies, in forum: Long Covid research
  8. Mij
    Thread

    Review Non-Pharmacological Treatment of Autonomic Dysfunction in Parkinson’s Disease and Other Synucleinopathies, 2023, Palma, Jose-Albertoa;Thijs, Roland

    'Many patients with neurogenic orthostatic hypotension also have hypertension in the supine position. The BP can be extremely labile, resembling a...
    Thread by: Mij, Sep 10, 2023, 1 replies, in forum: Other health news and research
  9. Andy
    Thread

    Semi-supervised exercise training program more effective for individuals with postural orthostatic tachycardia syndrome... 2023 Wheatley-Guy et al

    Full title: Semi-supervised exercise training program more effective for individuals with postural orthostatic tachycardia syndrome in randomized...
    Thread by: Andy, Aug 21, 2023, 12 replies, in forum: 'Conditions related to ME/CFS' news and research
  10. Hutan
    Thread

    Coenzyme Q10 Benefits Symptoms in Gulf War Veterans: Results of a Randomized Double-Blind Study, 2014, Golomb et al

    https://direct.mit.edu/neco/article-abstract/26/11/2594/7999/Coenzyme-Q10-Benefits-Symptoms-in-Gulf-War?redirectedFrom=fulltext paywall I think...
    Thread by: Hutan, Jul 14, 2023, 9 replies, in forum: 'Conditions related to ME/CFS' news and research
  11. Sly Saint
    Thread

    Hypothesis The Role of Hypothalamic Phospholipid Liposomes in the Supportive Therapy of Some Manifestations of Long Covid: (ME/CFS) and Brain Fog,2023 Menichetti

    The Role of Hypothalamic Phospholipid Liposomes in the Supportive Therapy of Some Manifestations of Long Covid: Myalgic Encephalomyelitis/Chronic...
    Thread by: Sly Saint, Jul 4, 2023, 4 replies, in forum: ME/CFS research
  12. mango
    Thread

    "Drink more water"

    Why telling pwOI to just drink more water might not be as helpful as you'd think. I feel this Instagram post is worth a read, including the...
    Thread by: mango, Jul 2, 2023, 14 replies, in forum: Orthostatic intolerance
  13. Andy
    Thread

    Positive Effects of Probiotic Therapy in Patients with Post-Infectious Fatigue, 2023, Obermoser et al

    Abstract Post-infectious fatigue is a common complication that can lead to decreased physical efficiency, depression, and impaired quality of...
    Thread by: Andy, Jul 2, 2023, 3 replies, in forum: Other health news and research
  14. Mij
    Thread

    Effects of daily artificial gravity training on orthostatic tolerance following 60-day strict head-down tilt bedrest, 2023, J.-N. Hoenemann et al

    Abstract Purpose Orthostatic intolerance commonly occurs following immobilization or space flight. We hypothesized that daily artificial gravity...
    Thread by: Mij, Jun 29, 2023, 0 replies, in forum: 'Conditions related to ME/CFS' news and research
  15. Mister Person
    Thread

    Protocol A Proof-of-concept Study to Evaluate the Efficacy and Safety of Rozanolixizumab to Treat [Adults] With Severe Fibromyalgia Syndrome, 2022-4, UK

    https://classic.clinicaltrials.gov/ct2/show/NCT05643794?recrs=abdf&type=Intr&cond=Fibromyalgia&draw=3&rank=11 Someone is moving ahead with the...
    Thread by: Mister Person, Jun 28, 2023, 6 replies, in forum: 'Conditions related to ME/CFS' news and research
  16. Sly Saint
    Thread

    Strawberries Improve Pain and Inflammation in Obese Adults with Radiographic Evidence of Knee Osteoarthritis

    Abstract Osteoarthritis (OA), the most common form of arthritis, is a significant public health burden in U.S. adults. Among its many risk...
    Thread by: Sly Saint, Jun 18, 2023, 7 replies, in forum: Other health news and research
  17. Hutan
    Thread

    Protocol Phase III Clinical Trial on the Efficacy and Safety of Meplazumab ... in the Treatment of Post-covid-19, 2023

    The actual study start date was March 2023, the estimated primary end date was 1 June 2023 and the estimated study completion date is 1 October...
    Thread by: Hutan, Jun 16, 2023, 3 replies, in forum: Long Covid research
  18. Sly Saint
    Thread

    Fighting Post-COVID and ME/CFS – development of curative therapies, 2023, Scheibenbogen et al

    The sequela of COVID-19 include a broad spectrum of symptoms that fall under the umbrella term post-COVID-19 condition or syndrome (PCS). Immune...
    Thread by: Sly Saint, Jun 15, 2023, 11 replies, in forum: ME/CFS research
  19. SNT Gatchaman
    Thread

    The effect of hyperbaric oxygen therapy on myocardial function in post-COVID-19 syndrome patients: a randomized controlled trial, 2023, Leitman et al.

    The effect of hyperbaric oxygen therapy on myocardial function in post-COVID-19 syndrome patients: a randomized controlled trial Leitman, Marina;...
    Thread by: SNT Gatchaman, Jun 12, 2023, 8 replies, in forum: Long Covid research
  20. Sly Saint
    Thread

    A new NHS backed wafer could help thousands of migraine sufferers

    If you suffer from migraines, you’ll have no doubt tried everything to try and avoid them. From countless painkillers, beta-blockers, and trips...
    Thread by: Sly Saint, Jun 3, 2023, 1 replies, in forum: Other health news and research
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