I hope I'm not repeating an issue that has been brought up before, but I was surprised to see the following as the only descriptions of OI in some of the basic info about ME/CFS given by the MEA, AfME and the NHS (my bolding):
MEA: Orthostatic intolerance and autonomic dysfunction, including
dizziness, palpitations, fainting, nausea on standing or sitting upright from a reclining position' (
here) and 'Orthostatic intolerance – problems with pulse and blood pressure control leading to feeling faint/dizzy when upright' (
here).
AfME: 'Problems with the nervous system, such as poor temperature control and
dizziness on standing or sitting up and hyper-sensitivity to light and sound'.
NHS: Last symptom listed under 'Other symptoms: 'feeling
dizzy, sick or fainting when standing up from a sitting or lying position'.
Dizziness with OI, or OI only manifesting upon standing up, doesn't reflect my understand of OI in most PwME. Am I wrong? Do we know the percentage of PwME who experience dizziness?
If I'm correct that dizziness in OI isn't the norm in PwME, what could that mean, biologically? Is it a clue?
@Jonathan Edwards?