News from France

Thread:







Thread:

"Here is some context for this action because I don't think people are angry enough. This is not limited to France. It's just that the meeting [conference] was held in France and the French patients were awesome enough to do this. The project itself is (was) an EU project under

the Horizon Europe program. That means, every EU country and some affiliated countries contributed (indirectly) money to this. In the project, there were 14 research groups from 6 countries involved. And the worst is, on the surface, the project looks legit

They talk about biomarkers and pathogenic mechanisms but it became clear early on that the project leaders are part of the BPS crowd and this is what dominated the project. You can read up everything about the project on http://longcovidproject.eu

Now what really gets me. Horizon Europe grants are notoriously difficult to get (less than 10% chance of being funded). So, someone (or rather many scientists all over the world as there are a lot of peers assessing each proposal) thought this project worthy of funding.

Think about that! And now think about the fact that, in the 2026, there was a call for research into post-infectious diseases. Which included (among other points) the following: "Proposals should address most of the following research areas: ......

"Identify effective supportive rehabilitation approaches, including physical therapy, cognitive interventions, and psychological support, to enhance patient recovery, mental health and quality of life and evaluate their effectiveness."

It's a small step from this to full psychologisation. BPS is basically built into the call and if one doesn't address one of points of the call, it's basically an automatic rejection.

This is so much bigger than just France. https://ec.europa.eu/info/funding-tenders/opportunities/portal/screen/opportunities/topic-details/HORIZON-HLTH-2026-01-DISEASE-03

End Thread.

.
 
Last edited:
Reddit thread:



Notable that there is almost universal support. A direct implication of the lie that opposition to psychological models, despite being widely acknowledged in the literature itself as being the majority position, is a fringe minority is that there should be a large majority who could easily drown out that fringe vocal minority.

Extending the position of our biopsychosocial overlords that most people with ME/CFS must actually support the traditional psychological model, given that only a small fringe minority opposes it, albeit loudly... where is that large majority? Why do they never, ever speak out? In fact those promoting psychological models universally make up a small fraction of posts and comments and those get heavily downvoted. Almost everywhere, except in communities that impose it as a rule, that disallow all criticism of it. Those communities are strongly faith-based.

If it were true that only a fringe minority oppose them, the opposite would happen. Social media is not made of that fringe minority. The covidlonghaulers sub-reddit is as mainstream as it gets, and we can see the same in social media, all of this is widely acknowledged, to great frustration, in the medical literature. There are many private groups that can be shown as examples of that support, and the fact that they are private is actually not in their favor, they are the actual small, fringe minorities who impose a lockstep message.

It's absurd how such an obvious lie can persist. This idea of a large but silent majority that simply does not dare to speak because it, the vast majority, keep getting shouted down by the small, fringe vocal minority who oppose psychosomatic ideology and its consequences is pure nonsense, mathematically and socially impossible. And that's before you take into account how all of this is widely acknowledged in the literature. They actually both assert the small, fringe minority and lament the fact that most patients share the same position.
 
rvallee said:
Reddit thread:



Notable that there is almost universal support. A direct implication of the lie that opposition to psychological models, despite being widely acknowledged in the literature itself as being the majority position, is a fringe minority is that there should be a large majority who could easily drown out that fringe vocal minority.

Extending the position of our biopsychosocial overlords that most people with ME/CFS must actually support the traditional psychological model, given that only a small fringe minority opposes it, albeit loudly... where is that large majority? Why do they never, ever speak out? In fact those promoting psychological models universally make up a small fraction of posts and comments and those get heavily downvoted. Almost everywhere, except in communities that impose it as a rule, that disallow all criticism of it. Those communities are strongly faith-based.

If it were true that only a fringe minority oppose them, the opposite would happen. Social media is not made of that fringe minority. The covidlonghaulers sub-reddit is as mainstream as it gets, and we can see the same in social media, all of this is widely acknowledged, to great frustration, in the medical literature. There are many private groups that can be shown as examples of that support, and the fact that they are private is actually not in their favor, they are the actual small, fringe minorities who impose a lockstep message.

It's absurd how such an obvious lie can persist. This idea of a large but silent majority that simply does not dare to speak because it, the vast majority, keep getting shouted down by the small, fringe vocal minority who oppose psychosomatic ideology and its consequences is pure nonsense, mathematically and socially impossible. And that's before you take into account how all of this is widely acknowledged in the literature. They actually both assert the small, fringe minority and lament the fact that most patients share the same position.
Click to expand...

Wow.

Anyone know who the lady in the white shirt that runs into his face pointing and screaming in his face to get out is? ie is it someone seeking to be funded/working in the area 'for patients' (or is it 'to')?

I'm assuming the woman in a suit really isn't a staff member?...who was lucky not to have harmed the female patient (who was just stnading there) because even a well person being forced backwards whilst being held... well that's strange, inappropriate
 
Hi everyone,

I just want to warn the ME community that Winslow Santé Publique (WSP) is not our ally—quite the opposite.

In a few words:

WSP is a French Covid cautious / long COVID organization.
They have a long history of denying ME and harassing pwME, french ME organizations and doctors/researchers who dare to mention ME in the context of long COVID.

Elle_carnitine did a great job summarizing WSP in this X thread (it's in French, you can use X translation tool)



According to WSP, the cause of Long COVID is the persistence of the SARS-CoV-2 virus in the body; this viral persistence explain all the physical sequelae and illnesses triggered by a SARS-CoV-2 infection. In their view, Long COVID is a "broad but SINGLE entity" that would be resolved if the SARS-CoV-2 virus could be eliminated from the body. Therefore, ME has nothing in common with Long COVID, as the etiology is different.
 
MaudSac said:
Hi everyone,

I just want to warn the ME community that Winslow Santé Publique (WSP) is not our ally—quite the opposite.

In a few words:

WSP is a French Covid cautious / long COVID organization.
They have a long history of denying ME and harassing pwME, french ME organizations and doctors/researchers who dare to mention ME in the context of long COVID.

Elle_carnitine did a great job summarizing WSP in this X thread (it's in French, you can use X translation tool)



According to WSP, the cause of Long COVID is the persistence of the SARS-CoV-2 virus in the body; this viral persistence explain all the physical sequelae and illnesses triggered by a SARS-CoV-2 infection. In their view, Long COVID is a "broad but SINGLE entity" that would be resolved if the SARS-CoV-2 virus could be eliminated from the body. Therefore, ME has nothing in common with Long COVID, as the etiology is different.
Click to expand...

Oh that’s interesting, thank you for sharing.
At this point I saw this particular speech as a protest against pseudoscience.
 
MaudSac said:
Hi everyone,

I just want to warn the ME community that Winslow Santé Publique (WSP) is not our ally—quite the opposite.

In a few words:

WSP is a French Covid cautious / long COVID organization.
They have a long history of denying ME and harassing pwME, french ME organizations and doctors/researchers who dare to mention ME in the context of long COVID.

Elle_carnitine did a great job summarizing WSP in this X thread (it's in French, you can use X translation tool)



According to WSP, the cause of Long COVID is the persistence of the SARS-CoV-2 virus in the body; this viral persistence explain all the physical sequelae and illnesses triggered by a SARS-CoV-2 infection. In their view, Long COVID is a "broad but SINGLE entity" that would be resolved if the SARS-CoV-2 virus could be eliminated from the body. Therefore, ME has nothing in common with Long COVID, as the etiology is different.
Click to expand...



Thank You - @MaudSac

.
 
Last edited:
MaudSac said:
Their protest was great, Lemogne and Ranque are the main proponents of (B)PS in France for ME and LC. But, the hype WSP got from the ME community is very disturbing knowing their ME denial and pwME harassment.
Click to expand...
Urghh. Such a shame. Reminds me of a similar group in the US — Long COVID Action Project — who has done some great long covid advocacy projects but sees ME/CFS in a very negative light almost like pwME are “leeching” on Long COVID research, they believe all long covid is viral persistence equivalent to AIDS, and there’s been lots of harassment and even reports of death threats on social media…

I haven’t heard much at all from them since I left Xitter so maybe they faded into irrelevance. One can hope.
 
SNT Gatchaman said:
Speaking truth to power, while his hands are shaking. Garner walking out at 0:30, returns following Sharpe at 1:20-2:00.
Click to expand...
Perhaps he had to protect himself from unhelpful thought to prevent a relapse of his fear of activity and death..
MaudSac said:
According to WSP, the cause of Long COVID is the persistence of the SARS-CoV-2 virus in the body; this viral persistence explain all the physical sequelae and illnesses triggered by a SARS-CoV-2 infection. In their view, Long COVID is a "broad but SINGLE entity" that would be resolved if the SARS-CoV-2 virus could be eliminated from the body. Therefore, ME has nothing in common with Long COVID, as the etiology is different.
Click to expand...
If that’s the case, it’s a real shame.
 
You must log in or register to reply here.
Back
Top Bottom