News from the Institute of Neuroimmune Medicine (INIM), NOVA, Nancy Klimas

Well, for me, what you say did figure into my returning to work too quickly. I was trying to break into an industry via a job where I could easily be replaced and where being there every day was critical (it also didn't pay sick time, but that was not really the issue for me).

It wasn't a matter of being a workaholic. It was more that I felt young and indestructible and I assumed that I didn't need to be 100% to go back to work. I'd gotten away with it before - - but I'd never been so run down prior to getting the flu before.

 

Exactly. Same here. But in fact, what came on top of my view "no problem to behave normal with an infection", I felt it was expected from me to behave like that. I was new in the company. It went like "It's your choice" - a long glance.

This type A stuff is crap in my opinion.
I'm definitely not type A by the way. But, which is quite normal in humanity, there are several "bondages" which force you to become a bit like "Type A", no matter if you like it or not.

 

I caught the viral infection during a career transition, it was somewhat stressful but the viral infection prevented me from working for 8 months, so I stayed home and took very good care of myself. I was able to return to work after 8 months, I felt refreshed and 95% improved. I felt recovered until the 3 week mark when my sleep became disrupted (feeling wired up) and started walking like a drunk on my 15 minute walk to work. I went downhill very quickly after that and became disabled. It wasn't during a stressful period.

 

do you think the so called 'experts' in the UK ever watch/read any of this(?) stupid question; I doubt they would understand it anyway

One of the last slides:


I'm not sure why the reference to CBT is there though?

 

Money is a problem again


https://l.facebook.com/l.php?u=https://sharkmedia.nova.edu/media/MECFS+Broward+Support+Group+08+21+2018/1_um15n6ib?fbclid=IwAR2u4nX-G8SKbktCQoOQFeTVuiL_nT7A7XAwcs76qanLKf25UpB0sKUTJ7A&h=AT0YK5yhwcx0X2ywMMtUIba5RPO-8xMcKN4z0U-EhbfZuaJFtecz8X_4kEB3xCfK8j8Y1KYbRucRTBb6UafK7UqimUOx_M5K6XZfQw8K7gEAG2tL_PxBMW3ha5LroyOm3r0&s=1

 

The direct link is https://sharkmedia.nova.edu/media/MECFS+Broward+Support+Group+08212018/1_0fl7jusw which is from August this year.

 

I watched it, was interesting
I could not make out most of the questions though i could guess what some of them from the responses though some were confusing.
A transcript would be nice

Also she mentioned acetyl cysteine, i'm, on it currently, helps cognition a bit.

 

I'm just getting a blank black screen in the middle of the page.

 

Nova Southeastern University Receives $8.5 Million Grant from Department of Defense for Second Phase of Gulf War Illness Research

https://globenewswire.com/news-rele...econd-Phase-of-Gulf-War-Illness-Research.html

Exerpt:

 

GWI seems to get a bunch more funding despite affecting way less people than ME.

 

One soldier in 3 from the Gulf War is still afflicted with Gulf War Illness. Certainly the Department of Defense has been helpful in providing research funding.

 

Hopefully, this grant reflects on some success they've seen in their recent GWI trial. They're looking to do something similar in relation to ME, but are having trouble finding funding. In a video posted on this thread, Dr. Klimas said that a Parkinson's group had agreed fund a small ME/CFS trial in exchange for Nova Southeastern looking into Parkinson's using their sophisticated computational biology system. [I think I got that right.]

https://sharkmedia.nova.edu/media/MECFS+Broward+Support+Group+08212018/1_0fl7jusw

 

Klimas also mentioned recently that an ME/CFS patient had helped raise half the money needed for the ME/CFS Men's subgroup pilot trial, which she said should be enough to at least get started on it, hopefully by the end of this year. Exciting stuff!

 

Does anyone know more about the ME/ CFS Men´s trial? is there any posibility to contribute some funding? I would really love to support that....

 

The subgroup (men) of the GWI trial is on this page:
https://www.nova.edu/nim/research/research-studies.html

To donate there is a page here:
https://www.nova.edu/nim/donations.html

 

@Snowdrop thank u for the links. But if I donate how can I make sure it goes to ME/ Cfs men's trial? Maybe I will contact Nova first...

 

I'm sorry but I don't know specifically. I'm not even sure that you can donate to a specific trial although the question is a reasonable one. An example of how universities and other institutions could be more open with information.

I could also not find a specific email for Nancy Klimas. Just the general one for NSU. So the only thing I can suggest is the general email with the specif question directed at INIM.

In general the rights of people donating time/money or whatever (to be provided info) is not really on the radar of those who receive the gifts. Apologies for my comment being off the topic of your question.

 

Podcast Long Covid The Answers - Episode 23 - Are Monoclonal Antibodies a Possible Treatment for Long Covid? With Professor Nancy Klimas

An interview with Dr. Nancy Klimas who says they will be starting a clinical trial next year for LC with a monoclonal antibody similar to Regeneron which is now out of production. The similar drug will be made by AstraZeneca.

https://open.spotify.com/episode/1EBGR6oF0HEhvBpi4ttGvd?si=af0224a9f3734f3a