NHS England web pages on ME/CFS

They also offer: breathing techniques
I'm permanently damaged by trivial exercise, I don't need to be taught how to breath, I already figured it out when I was born.

 

it looks as if they snuck in a few amendments when the site was reviewed in May 2024.

Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS) - Symptoms - NHS (www.nhs.uk)

 

Well this might make the weird, and false, argument from our biopsychosauruses that PEM constitutes a completely new and never-before-heard-of definition of ME/CFS a tad bit problematic.

Not that the substance of their argument is of any important but still.

They chose to ignore it in all their studies and trials because of how they chose to define their pseudoscience. Even though it basically makes no difference since their crap doesn't work any better without or without it. For anything. Literally symptoms cannot be improved using any of this psychobehavioral crap unless they are actually psychobehavioral, which is not even close to be the case here.

Feels too little too late but still, reality is slowly piercing the veil of willful ignorance one tiny bit at a time. Not that I can't see them quietly backtracking following a few chummy calls or text messages...

 

Moved posts

I think there was a thread about this but I can't find it so posting here. I think the NHS website for ME/CFS has been improved.

https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/

- PEM listed as a main symptom
- GET mentioned as unsuitable

Is this old news that I have missed? I'm sure it looked much worse than this when I last checked it.

 

I'm quite pleased to see these changes. I would still prefer if the link text itself referred to mecfs rather than cfs, but the most important thing is the addition of PEM.

 

Still not NICE-compliant, though, as they list CBT as a treatment, when it's explicitly described as support in the guideline.

So as usual it's a compromise between reality and fiction.

 

Also, energy management isn’t a treatment either.

 

It needs to be energy conservation as the main management strategy

then anything else isn’t even that - just add ins fir other things?

 

The same way as not spending money is not a treatment for poverty. This shouldn't be hard to understand. It's literally easy to understand. But lots of people struggle with both propositions, with plenty who even think that not helping poor people is the better option. It's the same underlying beliefs and deficit of perspective that fail.