NIAID will host “Workshop on Post-Acute Sequelae of COVID-19” on Dec 3-4 2020

Registration is now open for this online, NIAID-hosted workshop:

Workshop on Post-Acute Sequelae of COVID-19
December 3, 2020—December 4, 2020
10:00 AM - 5:00 PM Eastern Time

Videocast

The workshop will be hosted on the Zoom platform; however, due to space restraints on Zoom, we will also videocast the meeting (https://videocast.nih.gov/watch=38878.)

Questions?

If you would like to ask the speaker or breakout group a question, please email: postacuteCOVID19seq@niaid.nih.gov with your question and the speaker or breakout group’s name. We will answer as many questions as possible within our time constraints.

Individuals with disabilities who need a reasonable accommodation to participate in this event should contact: Christina McCormick, christina.mccormick@nih.gov.

Register By December 1, 2020, 12:00 PM

Go to https://cvent.me/MQAxOa to register.

 

Great news

 

Highlights, see thread:

https://twitter.com/user/status/1334377560998817792

 

I tuned in for snippets. I had to turn off when the CDC guy was told we need to track long COVID and he said that was not possible as we don't have studies and agreement on how to diagnose. Where has that happened before I wonder.

One positive impression I had is that with all the work going on studying acute COVID cases there is going to be a lot more baseline data that will help longCOVID research. Some of the deep dives into Tcell analysis for example were fascinating. No idea what they were talking about.

 

Another thread following the telecast. This one has lots of talk about ME from Peter Row. Long thread, with screenshots.

https://twitter.com/user/status/1334587076931547137

 

Just going to post directly highlights from Dr Nath:

https://twitter.com/user/status/1334576743642959879

 

More highlights from day 2:

https://twitter.com/user/status/1334892635538878464


https://twitter.com/user/status/1334905530691723265


https://twitter.com/user/status/1334906501962469380


https://twitter.com/user/status/1334907300201394176


https://twitter.com/user/status/1334926091996131329


https://twitter.com/AlisonSbrana/status/1334929467966279681

https://twitter.com/AlisonSbrana/status/1334930159078502400

 

Even more highlights. MOAR!


https://twitter.com/user/status/1334879444041953280


https://twitter.com/user/status/1334914629856849920


https://twitter.com/user/status/1334923754938507265

 

And a New York Times article, which is sadly naive of all context. If minimal attention had been given to this problem it would not have been necessary to cram years of neglected work into mere months. Now it is urgent. It was always urgent, but now it is... urgenter?


Covid Survivors With Long-Term Symptoms Need Urgent Attention, Experts Say

https://www.nytimes.com/2020/12/04/health/covid-long-term-symptoms.html?smid=tw-share

Hmmm... that damn s-word. Not ideal.

Work should have started decades ago. Medicine knows nothing here as a choice, made with extreme foolishness. Denial has consequences.

 

Comments on the above {crappy} NYT article are open now—please make comments about MECFS—thanks.

 

Have not seen many reactions so far. But I'll take as a good sign that the only reaction I have seen is rather positive.

https://twitter.com/user/status/1335012775068921863


https://twitter.com/user/status/1335016723305668609


I seem to remember he had tweeted something to the effect that LC has effectively challenged the notion of "all in the mind" but either I mixed up who tweeted it or he deleted it. Oh well.
(It was somebody else)

 

Recordings now available.

Day 1: https://videocast.nih.gov/watch=38882

Day 2: https://videocast.nih.gov/watch=38879

 

https://www.meaction.net/2020/12/30/nih-hosts-workshop-on-long-covid-read-the-summary
https://twitter.com/user/status/1344832327118106624