NL: UWV Dutch Employee Insurance Agency ao disability

[Utsikt]

There was a 3-step procedure. First UWV, they stood by their own decision 20 hours a week. Then appeals court, that decided, in short, UWV had to do their homework again, in doing that they considered my objections again. An objective CPET-test with numbers does not allow talking up the numbers from 40% to 44%, because that was measured to be enough for a job as telephonist. Only one job offered was not enough, the law required 3, with each 10 realistic openenings available. The other 2 jobs were energetically out of the question (probably not VO2max measured).
Maybe there was more but these were the most important.

Not using CPET at all would have meant for me no disability and still working 20 hours that made me worse or accepting no work no income.

So you had to do a CPET for your disability claim?

Sounds like a very weird system they’ve got going on..

 

[Turtle]

So you had to do a CPET for your disability claim?

Sounds like a very weird system they’ve got going on..

I used my CPET outcomes for my disability claim, no one ordered me to do that.
I needed objective data: CPET provided that. Letters from 3 doctors did not help.
My own words did not "prove" anything.

 

[Utsikt]

I used my CPET outcomes for my disability claim, no one ordered me to do that.
I needed objective data: CPET provided that. Letters from 3 doctors did not help.
My own words did not "prove" anything.

Ah, okay. Thanks for explaining!

Seems like a discriminating system, then, and that the current ruling doesn’t really change the landscape that much.

 

[ukxmrv]

I used my CPET outcomes for my disability claim, no one ordered me to do that.
I needed objective data: CPET provided that. Letters from 3 doctors did not help.
My own words did not "prove" anything.

Sorry Turtle to hear what you have been doing through. Thank you for explaining what it is like.

 

[Chestnut tree]

The UWV uses the FML (Functionele Mogelijkheden Lijst) Functional abilities list.

However this list does not include how long you can do something, so a huge disadvantage for ME patients.

The Steungroep also has written a report and it showed a lot of Me patients get assessed well enough to work 20 hours even the house- and bedbound patients.

The UWV also is very good at discounting other dr’s, especially foreign dr’s and other tests.

I had the TTT (and yes it crashed me), and a lower vo2max, but they did not change their assessment.

So in my view it is positive that they have to take these things seriously.

These tests should not be made mandatory, but if people have them they should be taken seriously.

 

[Turtle]

Bottomline for UWV. They were so afraid of people cheating that they themselves cheated all ME/CFS patients out of disability claims.