On Saturday ‘millions’ of ‘missing’ people will reappear for the day

Indigophoton · May 9, 2018

On Saturday 12 May, there will be demonstrationsand vigils across the UK and around the world, for millions of people ‘missing’ in the eyes of many. The events aim to make these invisible people visible – for more than just one day. They’re called the “Millions Missing”.

ME/CFS: chronic and debilitating
Myalgic encephalomyelitis/chronic fatigue syndrome, commonly referred to as ME/CFS, is a chronic systemic neuroimmune disease. While symptoms vary for every person, people living with it often experience:

Chronic/severe fatigue, brought on by either physical or mental activities, or both. Often referred to as post-exertional malaise.

Flu-like symptoms.

All-over pain.

Sleep disturbance/problems.

Cognitive impairments.

Impairments of the body’s autonomic systems, such as nervous, digestive and endocrine.

Hypersensitivity.

Between 17 and 24 million people worldwide are thought to be living with ME/CFS; in the UK, it is around 250,000. But the disease has been fraught with controversy, not least because, for decades (and often still to this day), the medical profession has not properly recognised it. From talk of “yuppie flu” to the notorious PACE trial, people living with ME/CFS have been disbelieved, stigmatised, given incorrect treatment or ultimately told it’s ‘all in their heads’. But every year, an event fights to redress the balance.
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https://www.thecanary.co/discovery/...-of-missing-people-will-reappear-for-the-day/

Andy · May 9, 2018

Thought it was a pretty good article, and I liked the end paragraph.

For people living with ME/CFS, often putting pen to paper or tapping the keyboard can be a debilitating process. Imagine you’ve just run a marathon, and then someone asks you to start jogging all the way back around the course. This is what it can be like living with ME/CFS. So for people living with the disease, going out to protest about the way they have been abandoned by society is a huge event in itself. Let’s honour this on Saturday 12 May by showing them – the Millions Missing – our full solidarity.
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On Saturday ‘millions’ of ‘missing’ people will reappear for the day

Indigophoton Senior Member (Voting Rights)

Andy Committee Member

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On Saturday ‘millions’ of ‘missing’ people will reappear for the day

Indigophoton Senior Member (Voting Rights)

Andy Committee Member

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